This video on electronic health data utilizes the metaphor of making chocolate to clearly lay out how electronic health records can be used to anonymize data. It is a useful tool for clearly explaining EHRs and the privacy inherent in building a research network.
Resources
Measuring an Epidemic
Speakers John Muench, MD, MPH and Thuy Le, MPH, both of OCHIN discuss the liberalizing of chronic opioid prescribing in the 90s was soon followed by unforeseen harm to individuals and communities.
Muench and Le review the history of the rise in opioid addiction and overdose deaths, prior efforts to track pain medication prescriptions, and current efforts to organize the ADVANCE Clinical Research Network electronic health record data to more easily describe prescribing pattern changes that follow interventions at national, state, and clinic levels.
PaTH to Health Diabetes Study: Postcards and Digital Newsletters
The PaTH Clinical Research Network (CRN) created these promotional postcards to be distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH’s free biannual digital newsletter. Stakeholders can use this document to draft their own outreach materials.
PCORnet Glossary of Terms
This glossary can be used to understand the terms and acronyms used by PCORnet.
Engagement Terms Glossary
This document was developed by the PCORnet Engagement Committee and contains terms commonly used in engagement activities and guidance for how to discuss engagement in the clinical research space.
Evaluation Plan of a Research Study
This Evaluation Plan from the “PCORnet Obesity Observational Research Initiative,” was used to evaluate the different components of the research study. Use it as an example of how to evaluate your own research studies.
Prepared by: John Holmes, PhD, Brie Purcell, MPH, and Beth Syat, MPH
Common Data Model Glossary
This is the PCORnet Common Data Model Glossary. Use this to learn how terms are used in the context of the PCORnet Common Data Model.
Biorepository Task Force Resources – Informed Consent
The document provides guidance recommendations and strategies for biobank sustainability.
Creative Commons: Extending the Value of PCORnet Efforts
This presentation goes over the differences between intellectual property and data, Open Access, attributions, and Creative Commons licenses.
Speaker: John Wilbanks
Graphic Facilitation to Increase Participant Engagement
Graphic facilitation is a visual communication method that uses images, symbols, and illustrations to convey information and ideas. It is a dynamic and interactive way of engaging with participants, whether it’s a team of colleagues or a community of partners who bring different knowledge, skills, and experience to a meeting. Using graphics to capture the content makes it easier for everyone to understand. This method adds another layer of engagement using imaginative storytelling techniques, clever metaphors, and analogies so viewers connect with the content.