PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). It is designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships. In the process, it is transforming the culture of clinical research from one directed by researchers to one driven by the needs of patients and those who care for them.
PCORI’s recent 2018 Annual Meeting showcased PCORnet-related research through more than 14 posters over the meeting’s three days. These posters highlighted PCORnet’s innovative tactics for patient recruitment and engagement, the power of PCORnet’s data and infrastructure, and patient-centered research in action. Here are some of the highlights: Patient Recruitment & Engagement The first step of … Continue reading PCORnet Successes on Full Display at PCORI’s 2018 Annual Meeting
In a recent Pediatrics paper, the nonprofit pediatric health system Nemours credited PEDSnet for increasing the speed and scope of a study of obesity and asthma in children. PEDSnet, a partner network of PCORnet, the National Patient-Centered Clinical Research Network, offered the Nemours research team access to deidentified data from the medical records of more … Continue reading Nemours Researchers Tap PEDSnet to Glean New Insights on Link between Childhood Obesity and Asthma
People-Centered Research Foundation: Notice of intent to publish a request for proposals for privacy-preserving record linkage
PCRF is searching for software and technology vendors to provide services and/or solutions for a privacy-preserving record linkage method to be used in PCORnet. This standardized linkage method is intended to first assist PCRF in determining whether patients are present across multiple network partners, ultimately expanding PCORnet’s research capabilities. A formal Request for Proposals … Continue reading People-Centered Research Foundation: Notice of intent to publish a request for proposals for privacy-preserving record linkage