Network Spotlight: PEDSnet

Get To Know The PCORnet® Network Partners

Across its founding institutions, PEDSnet, a pediatric PCORnet® Clinical Research Network, has created a longitudinal data resource that dates back to 2009, cutting across all pediatric diseases, and including all pediatric specialties.

PEDSnet participates in numerous PCORnet® Studies and is the lead for the following:

• Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
• Pediatric KIDney Stone (PKIDS) Care Improvement Network
• Biologic Abatement and Capturing Kids’ Outcomes and Flare Frequency in Juvenile Spondyloarthriti s (BACK-OFF JSpA)
• Semantic Data Quality Standards for Multi-Center Clinical Research Studies and Networks
• Comparative Effectiveness of Palliative Surgery vs Additional Anti-Seizure Medications for Lennox-Gastaut Syndrome
• The RECOVER Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
• Achieving Equity: Inclusion of Adults with Congenital Heart Disease (CHD) Living with Neurodevelopmental Disorders (NDDs) in Patient Centered Outcomes Research