The mission of PCORnet, the National Patient-Centered Clinical Research Network, is to support patient-centered and data enabled clinical research to deliver results that matter, faster. PCORnet envisions a sustainable Network that supports patient-centered research and answers questions important to patients, caregivers, clinicians, and the broader healthcare community.
PCORnet harnesses the power of health information (EHRs, claims data, registry data) to enable research to be conducted more efficiently and with greater power than previously possible. It originated with, and evolved through funding support from the Patient-Centered Outcomes Research Institute (PCORI) to develop a range of useful resources and partnerships.
The key elements of PCORnet are displayed below. This Network of Networks is governed by a Steering Committee, which contains patient representatives and leaders from PCORnet’s constituent organizations – 9 clinical research networks, 2 health plan research networks, coordinating centers, the People-Centered Research Foundation (the Central Office for PCORnet), and its main funder, PCORI.
PCORnet Clinical Research Networks (CRNs) and Health Plan Research Networks (HPRNs)
CRNs are networks that originate in healthcare systems, such as hospitals, health plans, or practice-based networks, and securely collect health information during the routine course of patient care. HPRNs are composed of U.S. health plans collaborating with CRNs to link health insurance claims data with data from the CRNs’ electronic health records and other sources of data.
PCORnet Coordinating Center
The PCORnet Coordinating Center is composed of three organizations working to lead the network’s data and engagement activities and support the overall network infrastructure.
PCRF is the Central Office for PCORnet and was formed by PCORnet Network Partners as an independent, non-profit organization to sustain PCORnet.