The CHW-SYSTIM study (Community Health Workers Systematically Assessing and Addressing Social Determinants of Health to Improve Outcomes in Community-based Health Centers) prepared this training workbook to onboard community health workers in a primary care outreach research study. Other researchers can adapt the training schedules, glossary, modules, and templates to their own projects.
Engagement
Toolkit for Community-Engaged Primary Care Research
This toolkit shares practical, adaptable resources developed and used in a study with Community Health Workers (CHWs) and Community Health Centers (CHCs) for other community-engaged research teams doing similar work. It reflects a comprehensive, collaborative, practice-informed approach to planning and conducting research in community-based primary care settings, including CHC onboarding, CHW training, implementation support, data collection, and dissemination activities.
Contents were developed with the Network for Community-Engaged Primary Care Research, or NCPCR, community, clinical, and scientific partners and advisors for use in the Community Health Workers Systematically Assessing and Addressing Social Determinants of Health to Improve Outcomes in Community-based Health Centers (CHW-SYSTIM) study.
This toolkit should be used as a library or menu of resources rather than a playbook. Links to templates, guides, and supporting documents are included throughout to allow users to explore materials in greater depth and adapt them for their own study design, partner organizations, or population needs.
Patient and Stakeholder Engagement Policy
The Research Action for Health Network (REACHnet) Clinical Research Network (CRN) has developed a comprehensive Engagement Policy to advance the mission of PCORI to meaningfully engage patient and other stakeholders in the research process. This document can serve as guidance for stakeholders interested in patient-centered research.
OCHIN-ADVANCE PEP Engagement Guide and Request Form
OCHIN-ADVANCE Clinical Research Network (CRN) developed a request form for researchers to engage with their Patient Engagement Panel (PEP). This can be used as a template by stakeholders when creating utilization request forms to engage patient groups.
OCHIN-ADVANCE Patient Engagement Panel Handbook
The OCHIN-ADVANCE Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices. This can be used to inform development of a governance framework for stakeholder participation in a community and research setting.
Research Work Group Information Survey
This REDCap survey is a templated introductory survey to potential members of a research work group. The survey consists of demographic and research interest questions to better understand the expertise and interests of research team members. Other research teams can adapt the survey for use in their work groups.
Patient Engagement Panel (PEP) Proposal Review Template Presentation
OCHIN-ADVANCE Clinical Research Network (CRN) developed this template for researchers to use when discussing proposals with a Patient Engagement Panel (PEP). The template provides a structure for introducing the research study proposal, planned engagement, and how the PEP may support the study.
OCHIN-ADVANCE Engagement and Recruitment Guide
This document is an introductory guide for those interested in working with the OCHIN-ADVANCE Clinical Research Network (CRN). It describes engagement and recruitment activities and gives points of contact within the network. This can be used for stakeholders formulating documentation on engagement and recruitment activities.
Patient Advisory Council (PAC) Handbook
This handbook describes the policies, procedures, benefits, and practices of the Greater Plains Collaborative (GPC) Patient Advisory Council (PAC) membership and engagement opportunities. This resource can be used by researchers and other stakeholder groups that are interested in creating a PAC to make their research more patient-centered.
Patient and Community Engagement Consultation Form
This Patient and Community Engagement Consultation form can be used to document requests from collaborators to use a clinical research network's patient and community engagement services. Requestors will complete the form to provide details about their study including proposed methods for engagement and the level of engagement required. A Patient Partner will meet with the requestor to discuss tailored approaches to support meaningful engagement of patients and community partners in their research.
Access the Patient and Community Engagement Consultation Form.