The CHW-SYSTIM study (Community Health Workers Systematically Assessing and Addressing Social Determinants of Health to Improve Outcomes in Community-based Health Centers) prepared this training workbook to onboard community health workers in a primary care outreach research study. Other researchers can adapt the training schedules, glossary, modules, and templates to their own projects.
Training Institutions
Those that deliver health professional education include public and private universities and colleges, individuals affiliated with the delivery or administration of health professional education, and trade or professional associations representing these institutions, organizations, and individuals
Toolkit for Community-Engaged Primary Care Research
This toolkit shares practical, adaptable resources developed and used in a study with Community Health Workers (CHWs) and Community Health Centers (CHCs) for other community-engaged research teams doing similar work. It reflects a comprehensive, collaborative, practice-informed approach to planning and conducting research in community-based primary care settings, including CHC onboarding, CHW training, implementation support, data collection, and dissemination activities.
Contents were developed with the Network for Community-Engaged Primary Care Research, or NCPCR, community, clinical, and scientific partners and advisors for use in the Community Health Workers Systematically Assessing and Addressing Social Determinants of Health to Improve Outcomes in Community-based Health Centers (CHW-SYSTIM) study.
This toolkit should be used as a library or menu of resources rather than a playbook. Links to templates, guides, and supporting documents are included throughout to allow users to explore materials in greater depth and adapt them for their own study design, partner organizations, or population needs.
OCHIN-ADVANCE PEP Engagement Guide and Request Form
OCHIN-ADVANCE Clinical Research Network (CRN) developed a request form for researchers to engage with their Patient Engagement Panel (PEP). This can be used as a template by stakeholders when creating utilization request forms to engage patient groups.
OCHIN-ADVANCE Patient Engagement Panel Handbook
The OCHIN-ADVANCE Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices. This can be used to inform development of a governance framework for stakeholder participation in a community and research setting.
Patient Engagement Panel (PEP) Proposal Review Template Presentation
OCHIN-ADVANCE Clinical Research Network (CRN) developed this template for researchers to use when discussing proposals with a Patient Engagement Panel (PEP). The template provides a structure for introducing the research study proposal, planned engagement, and how the PEP may support the study.
Building Patient Partnerships and Engagement for Large, Data-focused Research Networks and Projects
This presentation from OCHIN-ADVANCE Clinical Research Network (CRN) discusses different engagement strategies for networks, and reviews their patient engagement panel program. Other researchers can adapt the strategies and programs to use within their own networks.
INSIGHT Data Dictionary
The INSIGHT Data Dictionary provides a detailed look at the data elements in INSIGHT’s Central Repository, including their format and content.
Recruitment and Retention Strategies for PCORnet Studies: Learnings from INSIGHT CRN
Effective recruitment and retention strategies that are adaptable to the patient population and changing macro-environment are essential to the success of clinical research studies. INSIGHT CRN’s “Recruitment and Retention Strategies for PCORnet Studies” guide offers the most effective strategies we have used to date.
Scholars Program Processes and Procedures
The PaTH Scholars Program was established to help researchers gain the skills and confidence needed to lead and participate in multi-site “real-world evidence” studies by mentoring and engaging scholars through hands-on participation alongside experienced PaTH researchers. This resource may be adapted by others wanting to create similar programs.
How Common are New Symptoms and Conditions After COVID-19? Results from PCORnet
Summary of the CDC’s research on symptoms experienced more than 4 weeks after first being infected with the virus that causes COVID-19. Researchers studied data from electronic health records of 1.8 million adults and 300,000 children from 42 PCORnet network partners.