Menopause Population Insights Report

This report describes the results of a data query of the patient population with at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January 1 – December 31, 2024. The query used a 5-year “look-back” period between January 1, 2020 – December 31, 2024, to identify patients with diagnosis codes for menopausal conditions reflected in the electronic health record. The query results will enhance public awareness of the population of patients with menopausal conditions as well as utilization of health care services by these patients across sites participating in PCORnet that potentially would be available for future health care research.

The Coordinating Center collaborated with PCORI to develop the specifications and criteria for this data query. Collaborators developed a comprehensive list of diagnosis codes related to menopause to be included in this query. The query identified demographic and geographic characteristics of the referenced patient population with at least 1 face-to-face encounter at a site participating in PCORnet during the 1-year query period (January 1 – December 31, 2024). From this patient population, the query characterized patients who had a diagnosis code for any menopause conditions in their electronic health record within a 5-year period (January 1, 2020 – December 31, 2024). The data query also described additional co-occurring conditions, medications, procedures, and utilization of health care settings for this patient group.

Additional methods and information used to specify the query and define the cohorts are available upon request by emailing [email protected].

The Coordinating Center programmed and distributed this data query to 75 partners in PCORnet.

Access the Menopause Population Insights.

Cancer Population Insights

This report describes the results of a data query of the patients that had at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January 1 – December 31, 2025. The query used a 5-year “look-back” period between January 1, 2021 – December 31, 2025, to identify patients with diagnosis codes for specific malignant cancers that were reflected in the electronic health record. The query results will enhance public awareness of the population of patients with malignant cancer as well as utilization of health care services by these patients across sites participating in PCORnet that potentially would be available for future health care research.

The Coordinating Center collaborated with PCORI to develop the specifications and criteria for this data query. Collaborators developed a comprehensive list of malignant cancers to be included in this query. The query identified demographic and geographic characteristics of the referenced patient population with at least 1 face-to-face encounter at a site participating in PCORnet during the 1-year query period (January 1 – December 31, 2025). From this patient population, the query characterized patients who had a diagnosis code for any of the given malignant cancers in their electronic health record within a 5-year period (January 1, 2021 – December 31, 2025). The data query also described additional co-occurring cancer conditions, cancer-related therapies and medications, procedures, and utilization of health care settings.

Additional methods and information used to specify the query and define the cohorts are available upon request by emailing [email protected].

The Coordinating Center programmed and distributed this data query to 74 partners in PCORnet.

Access the Cancer Population Insights

PCORnet® CRN Population Insights 2025

This report describes the results of a data query of the patient population with at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January 1 – December 31, 2025. The query results will enhance public awareness of the population of patients across sites participating in PCORnet that potentially would be available for future health care research.

The Coordinating Center collaborated with PCORI to develop the specifications and criteria for this data query. In addition to identifying demographic and geographic characteristics of the general patient population with encounters during the 1-year query period by care setting, the patient population was also stratified by payer status and individual PCORnet® CRNs and by the following care settings:

  • Ambulatory Visit
  • Emergency Department Visit
  • Emergency Department to Inpatient Stay
  • Inpatient Hospital Stay
  • Non-Acute Institutional Stay
  • Observation Stay
  • Telehealth Visit

Additional methods and information used to specify the query and define the cohorts are available upon request by emailing [email protected].

The Coordinating Center programmed and distributed this data query to 74 partners in PCORnet.

Access the PCORnet® CRN Population Insights 2025

Sensory Health Population Insights Report

This report describes the results of a data query of the patients with sensory-related health conditions that had at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January 1 – December 31, 2024. The query used a 5-year “look-back” period to identify patients with diagnosis codes for specific sensory-related health conditions that were reflected in the electronic health record. The query results will enhance public awareness of the population of patients with sensory health conditions as well as utilization of health care services by these patients across sites participating in PCORnet that potentially would be available for future health care research.

Access the Sensory Health Population Insights.

OCHIN-ADVANCE PEP Engagement Guide and Request Form

OCHIN-ADVANCE Clinical Research Network (CRN) developed a request form for researchers to engage with their Patient Engagement Panel (PEP). This can be used as a template by stakeholders when creating utilization request forms to engage patient groups.

Access the resource here.

Master Code Set

The master code set provides a centralized, standardized reference of clinical codes across various disease areas along with their corresponding descriptions and classifications. It is designed to support consistent cohort definition, analysis, and reporting by ensuring uniform use of codes across studies and sites. By consolidating all relevant codes into a single, curated resource, the master code set reduces ambiguity, improves reproducibility, and streamlines multi-site research workflows. This comprehensive mapping enables researchers to efficiently identify, compare, and analyze patient populations across a wide range of conditions and data domains.

View the master code set. (Excel File)

Research Readiness Snapshot

The Research Readiness Snapshot is a brief self-assessment and planning tool that helps PCORnet partner sites document their current capacity to participate in PCORnet research and identify strengths, gaps, and priorities for growth. It guides sites to review their latest PCORnet performance metrics (e.g., study participation, data readiness, and query responsiveness) and summarize key institutional infrastructure, policies, and best practices that support efficient, patient-centered research. Other research sites can use this resource to assess their own research readiness.

Access the Research Readiness Snapshot.

Research Work Group Information Survey

This REDCap survey is a templated introductory survey to potential members of a research work group. The survey consists of demographic and research interest questions to better understand the expertise and interests of research team members. Other research teams can adapt the survey for use in their work groups.

Access the Research Work Group Information Survey.

Patient Engagement Panel (PEP) Proposal Review Template Presentation

OCHIN-ADVANCE Clinical Research Network (CRN) developed this template for researchers to use when discussing proposals with a Patient Engagement Panel (PEP). The template provides a structure for introducing the research study proposal, planned engagement, and how the PEP may support the study.

Access the Proposal Template.

Metabolic and Endocrine Conditions Population Insights

This report describes the results of a data query of the patients with selected metabolic and endocrine conditions that had at least 1 face-to-face ambulatory encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January 1 – December 31, 2024. The query used a 5-year “look-back” period to identify patients with diagnosis codes for specific metabolic and endocrine conditions that were reflected in the electronic medical record. The query results will enhance public awareness of the population of patients with metabolic and endocrine conditions as well as diagnosis codes related to overweight and obesity across sites participating in PCORnet that potentially would be available for future health care research.

Access the Metabolic and Endocrine Conditions report here.