The PaTH to Health Diabetes part of the PaTH Clinical Research Network (CRN) developed this Newsletter template to keep Patient Partners informed about the progress of this study and to foster continued engagement.
Industry
Companies that design, invest in, or manufacture diagnostics, devices, pharmaceuticals, electronic records systems, and mobile apps, and organizations representing the life sciences industry, such as the Advanced Medical Technologies Association
Patient Engagement Officer Description
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other stakeholders who are seeking to hire a PEO to improve engagement through identifying, recruiting, and supporting patient partners and liaising between engagement work of an organization and staff from local sites.
GPC is a Network Partner in PCORnet®, the National Patient-Centered Clinical Research Network. PCORnet has been developed with funding from PCORI.
Recommendations for Future Projects
PCORnet Demonstration Project Meeting discussions resulted in this list of recommendations for future projects. Consider these recommendations when developing your own collaborative, people-centered research study.
Principles of Partnership Self Assessment Tool
This tool developed by the Greater Plains Collaborative (GPC) Clinical Research network (CRN) is used to assess and determine the extent to which their network’s research has abided by the Community-Campus Partnership for Health guiding principles of engagement. Use this assessment tool to help you identify the extent to which your research has incorporated engagement principles.
How can you contribute to scientific manuscripts?
At the request of our patient partners, the PaTH Clinical Research Network (CRN)/PCORnet Bariatric Study teams developed this FAQ resource to help partnering stakeholders understand how they can contribute to scientific manuscripts. It can be adapted for other studies.
PCORnet Glossary of Terms
This glossary can be used to understand the terms and acronyms used by PCORnet.
Engagement Terms Glossary
This document was developed by the PCORnet Engagement Committee and contains terms commonly used in engagement activities and guidance for how to discuss engagement in the clinical research space.
Graphic Facilitation to Increase Participant Engagement
Graphic facilitation is a visual communication method that uses images, symbols, and illustrations to convey information and ideas. It is a dynamic and interactive way of engaging with participants, whether it’s a team of colleagues or a community of partners who bring different knowledge, skills, and experience to a meeting. Using graphics to capture the content makes it easier for everyone to understand. This method adds another layer of engagement using imaginative storytelling techniques, clever metaphors, and analogies so viewers connect with the content.