The Research Action for Health Network (REACHnet) Clinical Research Network (CRN) has developed a comprehensive Engagement Policy to advance the mission of PCORI to meaningfully engage patient and other stakeholders in the research process. This document can serve as guidance for stakeholders interested in patient-centered research.
Stakeholder Engagement
PaTH to Health Engagement Paper Highlights
The PaTH to Health Diabetes part of the PaTH Clinical Research Network (CRN) developed this paper to share the importance of engaging Patient Partners in this study.
Principles of Partnership Self Assessment Tool
This tool developed by the Greater Plains Collaborative (GPC) Clinical Research network (CRN) is used to assess and determine the extent to which their network’s research has abided by the Community-Campus Partnership for Health guiding principles of engagement. Use this assessment tool to help you identify the extent to which your research has incorporated engagement principles.
Patient and Clinician Advisory Committee (PCAC) Evaluation Interview Guides
This interview guide was developed by the Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) to hold 30-minute semi-structured (confidential) phone interviews with Patient and Clinical Advisory Committee (PCAC) members and the CAPriCORN team. Stakeholders can use this guide to assess patient engagement in their own network.
Patient and Clinical Advisory Committee (PCAC) Online Survey Form
This survey was developed by the Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) to evaluate the progress of the Patient and Clinical Advisory Committee (PCAC) and identify areas for improvement. Use this to develop your own engagement survey for patients, caregivers, clinicians, and other community members.
GPC Engagement Meeting Norms
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) developed and used these engagement meeting norms as a way to orient and continually guide stakeholder interactions in their community. Use this document to guide the development of meeting norms for your own community.