The PaTH to Health Diabetes part of the PaTH Clinical Research Network (CRN) developed this Newsletter template to keep Patient Partners informed about the progress of this study and to foster continued engagement.
Engagement
Clinic Staff as a Unique Stakeholder Group in Patient-Centered Outcomes Research
Research Action for Health Network (REACHnet) and LPHI discuss the role of clinic staff in patient-centered outcomes research. Through a project funded by the PCORI Eugene Washington Engagement Award, LPHI implemented pragmatic research studies that resulted in a training workbook to help clinic staff better understand the research process.
Speaker: Daniele Farrisi
Presented: March 19, 2019
Patient Engagement Officer Description
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other stakeholders who are seeking to hire a PEO to improve engagement through identifying, recruiting, and supporting patient partners and liaising between engagement work of an organization and staff from local sites.
GPC is a Network Partner in PCORnet®, the National Patient-Centered Clinical Research Network. PCORnet has been developed with funding from PCORI.
Survey to Assess Engagement
The PaTH Clinical Research Network (CRN) distributed this engagement survey among their clinicians, patient partner, and staff to assess when and how each individual was engaged in PaTH research. This survey can be used by others as a model for conducting an engagement assessment survey tool.
Principles of Partnership Self Assessment Tool
This tool developed by the Greater Plains Collaborative (GPC) Clinical Research network (CRN) is used to assess and determine the extent to which their network’s research has abided by the Community-Campus Partnership for Health guiding principles of engagement. Use this assessment tool to help you identify the extent to which your research has incorporated engagement principles.
GPC Engagement Meeting Norms
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) developed and used these engagement meeting norms as a way to orient and continually guide stakeholder interactions in their community. Use this document to guide the development of meeting norms for your own community.
PaTH to Health Diabetes Study: Postcards and Digital Newsletters
The PaTH Clinical Research Network (CRN) created these promotional postcards to be distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH’s free biannual digital newsletter. Stakeholders can use this document to draft their own outreach materials.
PCORnet Glossary of Terms
This glossary can be used to understand the terms and acronyms used by PCORnet.
Engagement Terms Glossary
This document was developed by the PCORnet Engagement Committee and contains terms commonly used in engagement activities and guidance for how to discuss engagement in the clinical research space.
Graphic Facilitation to Increase Participant Engagement
Graphic facilitation is a visual communication method that uses images, symbols, and illustrations to convey information and ideas. It is a dynamic and interactive way of engaging with participants, whether it’s a team of colleagues or a community of partners who bring different knowledge, skills, and experience to a meeting. Using graphics to capture the content makes it easier for everyone to understand. This method adds another layer of engagement using imaginative storytelling techniques, clever metaphors, and analogies so viewers connect with the content.