This webinar features the Greater Plains Collaborative Clinical Research Network (CRN) and their Rapid PACE online engagement community for investigators. Through Rapid PACE, investigators can present their projects to and solicit feedback from a panel of patients and stakeholders. Other organizations seeking to work with GPC or establish patient and stakeholder reactor panels can use this webinar as a resource.
Related resources:
This webinar features the STAR Clinical Research Network (CRN) and their Person Centeredness of Research Scale (PCoR Scale), a seven-item scale that uses 5-point Likert ratings to assess the extent of person-centeredness of research products. Other organizations seeking to work with STAR-CRN or rate the person-centeredness of research could use this webinar as a resource.
This webinar features the PaTH Clinical Research Network (CRN) and their Story Booth project. PaTH’s Story Booth project collects audio stories from patients and caregivers, helping to bring together patients who are interested in getting engaged with researchers who are looking to engage patients around specific topics. Other organizations seeking to work with PaTH or engage patients and stakeholders by collecting audio stories can use this webinar as a resource.
This template was created for study communications professionals as an example of how to create a central press release to share with sites to generate local media coverage for a study in multiple places.
This communications toolkit of tips, templates and materials for the HERO OneFlorida hub was compiled to increase awareness about the PCORnet® HERO Research Program and increase enrollment in the HERO Registry. Researchers can use toolkit emails, press releases, videos, flyers and social media content for their own programs as appropriate.
This document created by the PaTH Clinical Research Network (CRN) describes the responsibilities and structure of their PaTH Protocol Review Committee (PNPRC). Others can use this as a guide to create their own committee within their organization.
The PaTH to Health Diabetes part of the PaTH Clinical Research Network (CRN) developed this paper to share the importance of engaging Patient Partners in this study.
The PaTH Clinical Research Network (CRN) designed this training explaining the benefits and limitations of observational studies, common data issues and how to manage them via the PaTH to Health Diabetes Study.
The PaTH to Health Diabetes part of the PaTH Clinical Research Network (CRN) developed this Newsletter template to keep Patient Partners informed about the progress of this study and to foster continued engagement.
Research Action for Health Network (REACHnet) and LPHI discuss the role of clinic staff in patient-centered outcomes research. Through a project funded by the PCORI Eugene Washington Engagement Award, LPHI implemented pragmatic research studies that resulted in a training workbook to help clinic staff better understand the research process.
Speaker: Daniele Farrisi
Presented: March 19, 2019