data report

New PCORnet® Population Insights Report Describes Nearly 47 Million Patients Across the Network

Posted on by Jodi Snare

A new Population Insights Report provides researchers and the public with an enhanced understanding of patients who received care within healthcare settings across sites participating in PCORnet®.

The report, Characteristics of the Patient Population Receiving Health Care Services Across Clinical Research Networks Participating in PCORnet®, can help researchers understand the capability of PCORnet data resources to answer research questions and recruit patients for future research powered by PCORnet. Highlights from the report include demographic, geographic, and care setting insights from the PCORnet® Clinical Research Networks (CRNs).

The new report demonstrates how the infrastructure offers access to a broad range of patient populations and standardized data, streamlining the research process while maintaining rigorous privacy protections. Access to PCORnet data resources helps researchers design and implement large-scale, innovative, patient-centered health research.

A Detailed Look at Patient Demographics

The Population Insights Report offers a comprehensive overview of the demographics of nearly 47 million patients who had at least one healthcare encounter at a site participating in PCORnet between January 1, 2024 and December 31, 2024. The patient population represented in the data includes a wide range of ages, races, and ethnicities for males and females.

The data in the report represent information recorded in electronic health records from patients across all 50 U.S. states. This means researchers can design projects and include groups in their studies that are representative of different communities and varying levels of urbanization. The report also includes healthcare visits that took place at a variety of care settings, including:

  • Ambulatory Visits
  • Emergency Department Visits
  • Emergency Department to Inpatient Stays
  • Inpatient Hospital Stays
  • Non-Acute Institutional Stays
  • Observation Stays
  • Telehealth Visits

In addition to the new report, other topic-specific reports are also available that characterize the extensive, real-world patient data available through PCORnet data resources, including:

Highlights and illustrations from the new Population Insights Report are available to view on the Population Insights webpage.

Interested in conducting national-scale research? PCORnet may be used by all interested investigators, regardless of affiliation or source of funding. Contact the PCORnet® Front Door to get started.

A New PCORnet® Population Insights Report Highlights the Capacity of the Network to Support Meaningful, Patient-Centered Research on Women’s Health

Posted on by Jodi Snare

Each year, PCORnet® connects researchers with health data from more than 47 million people nationwide through eight PCORnet® Clinical Research Networks, enabling large-scale, innovative, patient-centered health research. The infrastructure of PCORnet offers access to a broad range of patient populations and standardized data, streamlining the research process while maintaining rigorous privacy protections. A new PCORnet® Population Insights Report on women receiving health care services at clinical sites across PCORnet is now available, offering insights into the capacity of the network to support meaningful research focused on women’s health.

The report offers a comprehensive overview of the demographics and health conditions of more than 35 million women who received healthcare services at 71 sites participating in PCORnet between January 1, 2019, and December 31, 2023. Patients were included in the report if they were routinely seeking care for given diagnoses.

This Population Insights Report is a crucial resource for researchers, enabling them to assess how PCORnet resources can be used to conduct national-scale, patient-centered comparative clinical effectiveness research to improve women’s health. Three tables in the report highlight different characteristics of women receiving health care services across PCORnet:

  • Demographics
  • Procedures and medication use
  • Co-occurring and additional health conditions, such as
    • Alzheimer’s Disease or Alzheimer’s Disease Related Dementias
    • Atherosclerotic Cardiovascular Disease
    • Autoimmune Diseases
    • Breast Cancer
    • Depression and Mood Disorders
    • Endometriosis
    • Hypothyroidism
    • Menopause
    • Osteoporosis
    • Uterine Cancer

This report highlights the potential for researchers to use the power of PCORnet® to conduct patient-centered studies on a wide range of conditions that affect women’s health and to deliver fast, trustworthy answers that advance health outcomes.

Population Insights Reports are also available for other areas of research including gene therapy, maternal morbidity and mortality, telehealth, intellectual and developmental disabilities, mental and behavioral health, and the pediatric population across PCORnet. Most offer the largest national query of real-world data on health conditions, populations, or service utilization. Read them all.

Interested in conducting national-scale research in one of the areas highlighted in the Population Insights Report? PCORnet may be used by all interested investigators, regardless of affiliation or source of funding. Contact the PCORnet® Front Door to get started.