New Brief Highlights How PCORnet® Resources Power Patient-Centered Kidney Research

A new brief highlights how PCORnet® Studies are using the PCORnet infrastructure to conduct patient-centered research in nephrology. With chronic kidney disease (CKD) affecting about 35.5 million U.S. adults, and kidney stones becoming more common in children, adolescents, and young adults, nephrology research is critical for understanding treatment options and generating meaningful results for patients and caregivers.

The brief highlights the utility of PCORnet to support comparative clinical effectiveness research that can help patients make more informed decisions about their healthcare. Reflecting on her experience as the Principal Investigator for Empa DKD, Neha Pagidipati said, “We needed a network that could not only capture lab data across a broad enough population to meet our [diabetic kidney disease] DKD participant target, but also allowed us to track long-term outcomes in these patients. PCORnet resources offer the only networked datasets out there that could support this research.”

By leveraging PCORnet, researchers can access:

  • Data from everyday healthcare encounters with more than 47 million people annually across the U.S.
  • Proven, low-burden models for pragmatic research with minimal burden on participants
  • Patient input integrated across the study lifecycle

Ready to begin your next patient-centered study? Knock on the PCORnet® Front Door to get started.