19 Years and older (Adult, Older Adult)

Outcomes Database to Prospectively Assess Changing Therapy Landscape in Renal Cell Carcinoma (ODYSSEY RCC)

Posted on by Jodi Snare

Study Updated 03/28/2024

ClinicalTrials.gov#: NCT04919122
Study Design: Prospective Observational
PCORnet Infrastructure: Collaboration, CDM (+supplemental data), Engagement
Principal Investigator: Dan George
Site Name: Duke Clinical Research Institute
PCORnet® Network Partner: Coordinating Center
Funder: Exelixis, Bristol Myers Squibb, Merck, Pfizer
Funding Date: 2020
Study Duration: 2022 – 2026
Participating Clinical Research Networks: GPC, PaTH, REACHnet, STAR
Therapeutic Area: Oncology
Condition: Metastatic Renal Cell Carcinoma
Population: 19 Years and older (Adult, Older Adult)
Status: Recruiting

Research Question(s):

Can a research registry of patients with metastatic renal cell carcinoma (mRCC) patients help us better understand cancer management and health-related quality of life while receiving mRCC specific treatment? In combination with patient and physician surveys, PCORnet will be used to help us answer these questions.

Evaluating the Comparative Effectiveness of Telemedicine in Primary Care: Learning from the COVID-19 Pandemic

Posted on by Jodi Snare

Study Updated 03/05/2024

Study Website: Evaluating the Comparative Effectiveness of Telemedicine in Primary Care: Learning from the COVID-19 Pandemic
ClinicalTrials.gov#:NCT04684836
Study Design: Telephone survey of primary care practice leadership, Qualitative interview study with patients and primary care providers, Observational data analysis
PCORnet Infrastructure: Collaboration, CDM (+supplemental data), Engagement, Single IRB
Principal Investigator: Rainu Kaushal, Jessica Ancker
Site Name: Weill Cornell Medicine
PCORnet® Network Partner: INSIGHT
Funder: Patient-Centered Outcomes Research Institute (PCORI)
Funding Date: 2020
Study Duration: 2020 – 2022
Participating Clinical Research Networks: INSIGHT, OneFlorida+, STAR
Therapeutic Area: Health Disparities
Condition: Asthma; Chronic Obstructive Pulmonary Disease (COPD); Congestive Heart Failure; Diabetes; Hypertension
Population: 19 Years and older (Adult, Older Adult)
Status: Completed

Research Question(s):
What are the features of primary care telemedicine programs that have been newly implemented or expanded in response to the COVID-19 pandemic, and how do diverse populations experience these programs?

Primary Publications(s):
An urgent need for guidelines for telemedicine use. Lin JJ, Horowitz CR, Ancker JS. Journal of General Internal Medicine. 2022;38(4):1061-1062. doi:10.1007/s11606-022-07905-7

Patient experiences with and preferences for telemedicine relative to in-person care during the COVID-19 pandemic. Yu J, Andreadis K, Schpero WL, Abedian S, Kaushal R, Ancker JS. Telemedicine and e-Health. Published online 2023. doi:10.1089/tmj.2022.0311

Provider and patient experiences of delays in primary care during the early COVID-19 pandemic. Journal for Healthcare Quality. 2023;45(3):169-176. doi:10.1097/jhq.0000000000000380