Congestive Heart Failure

Characterization of Patients with Heart Failure and Patients with Atrial Fibrillation and Atrial Flutter in PCORnet Data

Posted on by Jodi Snare

Study Updated 03/28/2024

Study Design: Retrospective Observational
PCORnet Infrastructure: Collaboration, CDM, Engagement
Principal Investigator: Manesh Patel
Site Name: Duke Clinical Research Institute
PCORnet® Network Partner: Coordinating Center
Funder: Bayer
Funding Date: 2020
Study Duration: 2020 – 2025
Participating Clinical Research Networks: GPC, STAR
Therapeutic Area: Cardiovascular
Condition: Congestive Heart Failure
Population: 18 Years and older (Adult,  Older Adult )
Status: Completed

Research Question(s):
What is the occurrence of vascular, bleeding, or other events in Atrial Fibrillation or Atrial Flutter Patients patients?

Primary Publication(s):
Electronic Health Record Characterization and Outcomes of Heart Failure with Preserved Ejection Fraction
Rao VN, Cyr D, Wruck L, et al. Electronic health record characterization and outcomes of heart failure with preserved ejection fraction. American Heart Journal. 2023. In press, journal pre-proof.

Implementation of Patient-Reported Outcomes Measurement in Routine Clinical Practice for Heart Patients in PCORnet

Posted on by Jodi Snare

Study Updated 03/05/2024

Study Design: Prospective Observational
PCORnet Infrastructure: Collaboration, CDM (+supplemental data), Engagement, Single IRB
Principal Investigator: Justin Bachmann
Site Name: Vanderbilt University Medical Center (VUMC)
PCORnet® Network Partner: STAR
Funder: Patient-Centered Outcomes Research Institute (PCORI); (Project webpage)
Funding Date: 2017
Study Duration: 2019 – 2021
Participating Clinical Research Networks: PaTH, STAR
Therapeutic Area: Cardiovascular
Condition: Congestive Heart Failure
Population: 75 Years and older (Older Adult )
Status: Completed

Research Question(s):
Can PCORnet be leveraged to implement patient-reported outcome measures in routine clinical practice for heart failure patients at three different institutions?

Evaluating the Comparative Effectiveness of Telemedicine in Primary Care: Learning from the COVID-19 Pandemic

Posted on by Jodi Snare

Study Updated 03/05/2024

Study Website: Evaluating the Comparative Effectiveness of Telemedicine in Primary Care: Learning from the COVID-19 Pandemic
ClinicalTrials.gov#:NCT04684836
Study Design: Telephone survey of primary care practice leadership, Qualitative interview study with patients and primary care providers, Observational data analysis
PCORnet Infrastructure: Collaboration, CDM (+supplemental data), Engagement, Single IRB
Principal Investigator: Rainu Kaushal, Jessica Ancker
Site Name: Weill Cornell Medicine
PCORnet® Network Partner: INSIGHT
Funder: Patient-Centered Outcomes Research Institute (PCORI)
Funding Date: 2020
Study Duration: 2020 – 2022
Participating Clinical Research Networks: INSIGHT, OneFlorida+, STAR
Therapeutic Area: Health Disparities
Condition: Asthma; Chronic Obstructive Pulmonary Disease (COPD); Congestive Heart Failure; Diabetes; Hypertension
Population: 19 Years and older (Adult, Older Adult)
Status: Completed

Research Question(s):
What are the features of primary care telemedicine programs that have been newly implemented or expanded in response to the COVID-19 pandemic, and how do diverse populations experience these programs?

Primary Publications(s):
An urgent need for guidelines for telemedicine use. Lin JJ, Horowitz CR, Ancker JS. Journal of General Internal Medicine. 2022;38(4):1061-1062. doi:10.1007/s11606-022-07905-7

Patient experiences with and preferences for telemedicine relative to in-person care during the COVID-19 pandemic. Yu J, Andreadis K, Schpero WL, Abedian S, Kaushal R, Ancker JS. Telemedicine and e-Health. Published online 2023. doi:10.1089/tmj.2022.0311

Provider and patient experiences of delays in primary care during the early COVID-19 pandemic. Journal for Healthcare Quality. 2023;45(3):169-176. doi:10.1097/jhq.0000000000000380