Each year, the PCORnet® infrastructure connects researchers with health data from more than 47 million people nationwide through eight PCORnet® Clinical Research Networks, enabling large-scale, innovative, patient-centered health research. The PCORnet infrastructure offers access to a broad range of patient populations and standardized data, streamlining the research process while maintaining rigorous privacy protections.
A new PCORnet® Population Insights Report on patients with metabolic and endocrine conditions receiving health care services at clinical sites participating in PCORnet is now available. This report offers insights into the capacity of the network to support meaningful research on conditions that affect weight, growth, cholesterol, blood sugar, and more.
The report offers a comprehensive overview of the demographics and geographic characteristics of more than 41 million adults and children who received healthcare services at clinical sites participating in PCORnet between January 1 and December 31, 2024. Patients were included in the report if they were routinely seeking care for given diagnoses. Researchers who are interested in characterizing conditions not specified in this report should contact the PCORnet® Front Door.
This Population Insights Report is a crucial resource for researchers, enabling them to assess how PCORnet resources can be used to conduct national-scale, patient-centered comparative clinical effectiveness research to improve metabolic and endocrine health. Ten tables in the report highlight different characteristics of patients receiving health care services across sites participating in PCORnet:
- Demographics
- Geographic and care settings
- Medications
- Metabolic and endocrine conditions, including
- Obesity
- Diabetes
- Thyroid disorder
- Parathyroid disorder
- Osteoporosis
- High blood pressure
- High cholesterol
- Polycystic Ovary Syndrome
- Nonalcoholic liver disease
- Co-occurring health conditions
This report highlights the potential for researchers to use the power of PCORnet to conduct patient-centered studies on a wide range of conditions that affect the quality of life of millions of people and to deliver fast, trustworthy answers that advance health outcomes.
Population Insights Reports are also available for other areas of research including women’s health, gene therapy, maternal morbidity and mortality, telehealth, intellectual and developmental disabilities, mental and behavioral health, and the pediatric population across PCORnet. Most offer the largest national query of real-world data on health conditions, populations, or service utilization.
Highlights and illustrations from the reports are available to view on the Population Insights webpage.
Interested in conducting national-scale research in one of the areas highlighted in the Population Insights Report? PCORnet may be used by all interested investigators, regardless of affiliation or source of funding. Contact the PCORnet® Front Door to get started.