News

Hotel lobby filled with string lights

Featured News Story

Patient Reps Power PCORnet’s Steering Committee Part 2: A Q&A with Neely Williams

Even on a tough day, it’s hard not to smile while chatting with patient representative Neely Williams. Maybe it’s the passion she brings to patient-centered research as a community partner consultant at the National Institutes of Health and the patient co-principal investigator for the PCORnet Bariatric StudyMaybe it’s her knack for talking about research in a frank, down-to-earth manner that makes it accessible and unintimidating to lay communities. At any rate, Neely is undeniably a strong and positive force in the PCORnet community, and now that she’s joined the PCORnet Steering Committee as one of three patient representatives, her light shines even brighter.

In the News

October 31, 2018

Small association between early antibiotic exposure and weight gain in young children

Harvard Pilgrim Health Care Institute announces the publishing of results from its Obesity Observational Study, the largest study to date examining whether antibiotics at a young age have the potential to affect weight.

Read more at EurekAlert.org

October 29, 2018

Gastric bypass surgery is best for weight loss for severe obesity

Kaiser Permanente comments on the publication of the PCORnet Bariatric Study in the Annals of Internal Medicine.

Read more at KaiserPermanente.org

September 18, 2017

INVESTED Trial Tests High-Dose Flu Vaccine for Veterans With Cardiovascular Disease

US Medicine covers the INVESTED Study’s efforts to assess whether the high-dose, trivalent influenza vaccine reduces the risk of infection and complications compared to the standard dose influence vaccine.

Read more at USmedicine.com

August 24, 2017

Real-World Evidence: Lessons Learned From The ADAPTABLE Trial

Matthew Roe from the Duke Clinical Research Institute spotlights how real-world evidence fueled the ADAPTABLE study

Read more at Clinical Leader

April 4, 2017

Taking Shortcuts In Drug Testing Can Put Patients At Risk

NPR cites PCRF as an organization that leverages relationships with patients and health systems, as well as the digital transformation in health data, to generate robust clinical evidence faster, cheaper and better.

Read more at NPR

Stories and Announcements

March 23, 2020

Patient Reps Power PCORnet’s Steering Committee Part 2: A Q&A with Neely Williams

Even on a tough day, it’s hard not to smile while chatting with patient representative Neely Williams. Maybe it’s the passion she brings to patient-centered research as a community partner consultant at the National Institutes of Health and the patient co-principal investigator for the PCORnet Bariatric StudyMaybe it’s her knack for talking about research in a frank, down-to-earth manner that makes it accessible and unintimidating to lay communities.

Read more

March 18, 2020

JAMA Cardiology Paper Details Design Elements Of ADAPTABLE, First Pragmatic Trial To Use PCORnet®

A recent JAMA Cardiology paper describes several design elements that make ADAPTABLE, a demonstration study of PCORnet®, the National Patient-Centered Clinical Research Network, a novel pragmatic clinical trial. The manuscript’s authors detailed these trial elements with an aim to inspire efficiency and patient-centricity in future trials.

Read more

March 4, 2020

Real-World Evidence Empowers Personalized Decisions About Weight-Loss Surgery

With its latest findings in JAMA Surgery on how many adults see their Type 2 diabetes go away and come back following weight-loss surgery, the PCORnet Bariatric Study now provides patients and their doctors with a more complete picture about the comparative benefits and risks of the two most commonly used surgical procedures. This real-world evidence enables patients in consultation with their providers to make more personalized decisions about which option would be best for them.

Read more

February 18, 2020

PCORnet® Study ADAPTABLE Inspires New Tools To Rapidly Compare Data From EHRs And Patient-Reported Data

A team of researchers building on the learnings of ADAPTABLE is raising the research bar with the development of a new menu-driven query (MDQ) that enables rapid comparison between electronic health record (EHR) data and information reported directly by patients.

Read more