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Patient Reps Power PCORnet’s Steering Committee: A Q&A with Henry Cruz

If you are looking for a reason to get excited about the promise of PCORnet®, the National Patient-Centered Clinical Research Network, look no further than Henry Cruz. He’ll give you 10, and you’ll leave your encounter with him energized and in awe of a guy who grew up the youngest of 12 kids in a low-income community in Brooklyn and now lives in Harlem where he works to bring better community and patient engagement to clinical research.

Henry serves as a powerful patient advocate for bringing communities into the research fold. From delivering keynote speeches across Asia and Africa to co-authoring a peer-reviewed article on patient engagement for the American Heart Association, Henry’s life is a lesson in how a single voice can amplify a movement, build a coalition, and make a meaningful difference in the way patients and researchers engage.

In the News

October 31, 2018

Small association between early antibiotic exposure and weight gain in young children

Harvard Pilgrim Health Care Institute announces the publishing of results from its Obesity Observational Study, the largest study to date examining whether antibiotics at a young age have the potential to affect weight.

Read more at EurekAlert.org

October 29, 2018

Gastric bypass surgery is best for weight loss for severe obesity

Kaiser Permanente comments on the publication of the PCORnet Bariatric Study in the Annals of Internal Medicine.

Read more at KaiserPermanente.org

September 18, 2017

INVESTED Trial Tests High-Dose Flu Vaccine for Veterans With Cardiovascular Disease

US Medicine covers the INVESTED Study’s efforts to assess whether the high-dose, trivalent influenza vaccine reduces the risk of infection and complications compared to the standard dose influence vaccine.

Read more at USmedicine.com

August 24, 2017

Real-World Evidence: Lessons Learned From The ADAPTABLE Trial

Matthew Roe from the Duke Clinical Research Institute spotlights how real-world evidence fueled the ADAPTABLE study

Read more at Clinical Leader

April 4, 2017

Taking Shortcuts In Drug Testing Can Put Patients At Risk

NPR cites PCRF as an organization that leverages relationships with patients and health systems, as well as the digital transformation in health data, to generate robust clinical evidence faster, cheaper and better.

Read more at NPR

Announcements and Press Releases

December 13, 2019

PCORnet Leader Rainu Kaushal Elected To Prestigious National Academy Of Medicine

Dr. Rainu Kaushal wears many hats. She serves as the principal investigator for INSIGHT-NYC, a Partner Network of PCORnet®, the National Patient-Centered Clinical Research Network; chair of the Department of Healthcare Policy and Research at Weill Cornell Medicine; physician-in-chief of healthcare policy and research at New York-Presbyterian/Weill Cornell Medical Center, and a member of the PCORnet Steering Committee.

Read more

December 10, 2019

Patient Reps Power PCORnet’s Steering Committee: A Q&A With Henry Cruz

f you are looking for a reason to get excited about the promise of PCORnet®, the National Patient-Centered Clinical Research Network, look no further than Henry Cruz. He’ll give you 10, and you’ll leave your encounter with him energized and in awe of a guy who grew up the youngest of 12 kids in a low-income community in Brooklyn and now lives in Harlem where he works to bring better community and patient engagement to clinical research.

Read more

October 31, 2019

PCRF Seeks Nominations For Board Of Directors

The People-Centered Research Foundation (PCRF) seeks nominations from current PCORnet® Network members for its Board of Directors. PCRF is the Central Office for PCORnet, the National Patient-Centered Clinical Research Network. PCRF was formed by PCORnet Network partners as an independent, non-profit organization to sustain PCORnet.

Read more

October 23, 2019

Newly Funded Statin Pragmatic Trial To Be Fueled By PCORnet® Resources And Informed By The Network’s Past Success

PCORnet®, the National Patient-Centered Clinical Research Network, will serve as a key resource for a new pragmatic trial studying effectiveness of statins in older adults without known cardiovascular disease. The National Institute of Aging and the National Heart, Lung, & Blood Institute will support the trial, recently announcing funding of $90 million to bring it to life.

Read more