Study Updated 03/05/2024
Study Design: Methods to improve study design; methods to support data research networks
PCORnet Infrastructure: Collaboration, CDM (+supplemental data), Engagement, Single IRB
Principal Investigator: L. Charles Bailey
Site Name: The Children’s Hospital of Philadelphia
PCORnet® Network Partner: PEDSnet
Funder: Patient-Centered Outcomes Research Institute (PCORI)
Funding Date: 2021
Study Duration: 2021 – 2026
Participating Clinical Research Networks: INSIGHT, PEDSnet, REACHnet
Therapeutic Area: Other, Data Quality Standards
Condition: Data quality assessment, data quality analysis, data quality reporting, standards development
Population: This proposal does not focus on a specific population
Status: Active, not recruiting
Research Question(s):
- Can we find ways to more accurately describe how suitable data are to answer a specific research question?
- What are the tools that can be used across studies to consistently describe whether the data are high quality?