Other, Engagement

Measuring Co-creation During the Engagement Process in Research: A Pathway Forward

Posted on by Jodi Snare

Study Updated 03/05/2024

Study Design: Measurement development and validation
PCORnet Infrastructure: Collaboration, Engagement, Single IRB
Principal Investigator: Monica Perez Jolles
Site Name: University of Colorado, School of Medicine
PCORnet® Network Partner: External
Funder: Patient-Centered Outcomes Research Institute (PCORI)
Funding Date: 2023
Study Duration: 2023 – 2025
Participating Clinical Research Networks: ADVANCE, PaTH, REACHnet
Therapeutic Area: Other, Engagement
Status: Not yet recruiting

Research Question(s): Through this proposal, the research team will develop and test a new Co-creation in PCOR engagement measure that can be used to evaluate how researchers and community members work collaboratively and co-learn during the engagement process.

Measurement Matters: Refining and Validating a Patient-Centered Outcomes Research Engagement Measure

Posted on by Jodi Snare

Study Updated 03/06/2024

 

Study Design: Development and initial validation of a PCOR engagement tool
PCORnet Infrastructure: Collaboration, Engagement, Single IRB
Principal Investigator: Marc A. Cohen
Site Name: University of Massachusetts, Boston
PCORnet® Network Partner: External
Funder: Patient-Centered Outcomes Research Institute (PCORI)
Funding Date: 2023
Study Duration: 2023 – 2025
Participating Clinical Research Networks: GPC, PaTH, STAR
Therapeutic Area: Other, Engagement
Condition: Other; Science of Engagement Award to develop and validate an engagement tool on engagement quality and selected outcomes
Population: PCORI lead investigators and/or those who manage PCORI projects
Status: Not yet recruiting

Research Question(s):

  1. Can we develop a concise way to measure the extent to which researchers engaging older adults in research projects are doing so effectively and can we assign a score that represents a value for the quality of engagement?
  2. Having done this, can we then apply this new measure to score projects that are engaging older adults in research and see whether higher quality engagement scores are related to better short and medium term PCOR project outcomes?