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News and Announcements - All
- Inaugural Class of Patient Engagement Partners Graduates April 23, 2024The inaugural class of Patient Engagement Partners (PEP) has graduated, marking a significant stride toward bolstering the inclusion of patient-centered insights in research powered by PCORnet®. The PEP program, which included six patient partners in its first year, was established to diversify patient representation on PCORnet governance and fortify the bridge between researchers using PCORnet resources and the lived experiences ...
- It’s Been Four Years Since COVID-19 Was Declared a Pandemic. What Have We Learned from Research Powered by PCORnet®? March 6, 2024On March 11, 2020, the World Health Organization declared the outbreak of COVID-19 a global pandemic, marking a pivotal moment in modern history as nations around the globe grappled with the virus’s rapid spread. The declaration triggered a collective call to action, with government, communities, and researchers uniting to find answers. PCORnet®, one of the few national research infrastructures offering ...
- From Health Records to Sweet Outcomes – A Resource to Illustrate the Journey of PCORnet®-Leveraged Data February 29, 2024Have you ever wondered just how health data from people’s clinic visits are anonymized and transformed into insights that can improve health outcomes? Each step in the process, from collecting the data to removing personally identifying information and ensuring quality, is critical to the ultimate outcome: a clean, representative dataset that can be queried by researchers to better understand real-world ...
- Explore How PCORnet® Resources Support Patient-Centered Cardiovascular Research in New Brief February 28, 2024February is American Heart Month and a fitting time to spotlight the many ways PCORnet® infrastructure is helping research teams advance cardiovascular health insights that are meaningful to patients. A new brief outlines some of the most impactful cardiovascular research powered by PCORnet, as well as published results that have already helped shape the cardiovascular research landscape.
“Heart disease is the ...
- Mark Your Calendar! PCORI to Announce New Funding Opportunity for PCORnet® Studies January 4, 2024On January 9, PCORI will release the Broad Pragmatic Studies (BPS) PCORI Funding Announcement (PFA) to support high-quality patient-centered comparative clinical effectiveness research (CER). Category 3 supports PCORnet® Studies that advance PCORI’s National Priorities for Health with direct costs of up to $12 million.*
PCORnet® Studies are defined as those that:
Include two or more PCORnet-partnered Clinical Research Networks
Share study progress and performance metrics
Exchange ...
- Ahead of January PCORI Funding Announcement, New Report Highlights Capacity of PCORnet® to Support Intellectual and Developmental Disabilities Research December 22, 2023The Patient-Centered Outcomes Research Institute (PCORI) will release several patient-centered comparative clinical effectiveness research (CER) funding opportunities on January 9, inviting research teams to utilize the PCORnet infrastructure and resources to support both interventional and observational research addressing health issues faced by large populations in the United States.
A new report from a multidisciplinary workgroup, including patients and caregiver partners, focused ...
- ‘The flagship infrastructure in patient-centered outcomes research’: PCORnet®’s decade-long impact lauded at PCORI Annual Meeting November 21, 2023PCORnet® was a hot topic at the 2023 PCORI Annual Meeting, which took place October 4-5 virtually and in Washington, D.C. Every year, the event brings together researchers, clinicians, patients, and other partners across the health care ecosystem who are passionate about furthering patient-centered research. PCORI funded PCORnet in 2013 as a national resource where high quality health data, patient ...
- Telehealth Visits Provide Opportunity for PCORnet® Data Resources November 8, 2023The COVID-19 pandemic prompted a shift to the use of telehealth visits, opening a new frontier in healthcare delivery and an opportunity for PCORnet® data resources to assist researchers in studying the effectiveness of this rapidly evolving method of healthcare delivery.
Many patients, including those managing chronic diseases and those in underserved populations, including people who live in rural areas, adopted telehealth ...
- Tools to Speed Study Start-up October 24, 2023Tools powered by PCORnet® to accelerate research.
Take full command of your research! PCORnet now offers four new tools that empower you to maximize every aspect of your research, including study planning, design, start-up, and execution.
Data Sharing Agreement (DSA) speeds prep-to-research queries
Clinical Research Collaboration Agreement speeds the contracting process for PCORI-funded studies
SMART IRB and IREx List supports fast and easy search ...
- 16 new sites will expand the diversity of PCORnet® September 29, 2023A differentiator for PCORnet® has always been its ability to capture insights on diverse populations that clinical research studies often miss—and now that diversity is about to get even more robust. PCORI approved funding for the addition of 16 sites to expand the reach of the eight PCORnet® Clinical Research Networks (CRNs), a move that underscores PCORI’s continuing investment in ...
The inaugural class of Patient Engagement Partners (PEP) has graduated, marking a significant stride toward bolstering the inclusion of patient-centered insights in research powered by PCORnet®. The PEP program, which included six patient partners in its first year, was established to diversify patient representation on PCORnet governance and fortify the bridge between researchers using PCORnet resources and the lived experiences ...
On March 11, 2020, the World Health Organization declared the outbreak of COVID-19 a global pandemic, marking a pivotal moment in modern history as nations around the globe grappled with the virus’s rapid spread. The declaration triggered a collective call to action, with government, communities, and researchers uniting to find answers. PCORnet®, one of the few national research infrastructures offering ...
Have you ever wondered just how health data from people’s clinic visits are anonymized and transformed into insights that can improve health outcomes? Each step in the process, from collecting the data to removing personally identifying information and ensuring quality, is critical to the ultimate outcome: a clean, representative dataset that can be queried by researchers to better understand real-world ...
February is American Heart Month and a fitting time to spotlight the many ways PCORnet® infrastructure is helping research teams advance cardiovascular health insights that are meaningful to patients. A new brief outlines some of the most impactful cardiovascular research powered by PCORnet, as well as published results that have already helped shape the cardiovascular research landscape.
“Heart disease is the ...
On January 9, PCORI will release the Broad Pragmatic Studies (BPS) PCORI Funding Announcement (PFA) to support high-quality patient-centered comparative clinical effectiveness research (CER). Category 3 supports PCORnet® Studies that advance PCORI’s National Priorities for Health with direct costs of up to $12 million.*
PCORnet® Studies are defined as those that:
Include two or more PCORnet-partnered Clinical Research Networks
Share study progress and performance metrics
Exchange ...
The Patient-Centered Outcomes Research Institute (PCORI) will release several patient-centered comparative clinical effectiveness research (CER) funding opportunities on January 9, inviting research teams to utilize the PCORnet infrastructure and resources to support both interventional and observational research addressing health issues faced by large populations in the United States.
A new report from a multidisciplinary workgroup, including patients and caregiver partners, focused ...
PCORnet® was a hot topic at the 2023 PCORI Annual Meeting, which took place October 4-5 virtually and in Washington, D.C. Every year, the event brings together researchers, clinicians, patients, and other partners across the health care ecosystem who are passionate about furthering patient-centered research. PCORI funded PCORnet in 2013 as a national resource where high quality health data, patient ...
The COVID-19 pandemic prompted a shift to the use of telehealth visits, opening a new frontier in healthcare delivery and an opportunity for PCORnet® data resources to assist researchers in studying the effectiveness of this rapidly evolving method of healthcare delivery.
Many patients, including those managing chronic diseases and those in underserved populations, including people who live in rural areas, adopted telehealth ...
Tools powered by PCORnet® to accelerate research.
Take full command of your research! PCORnet now offers four new tools that empower you to maximize every aspect of your research, including study planning, design, start-up, and execution.
Data Sharing Agreement (DSA) speeds prep-to-research queries
Clinical Research Collaboration Agreement speeds the contracting process for PCORI-funded studies
SMART IRB and IREx List supports fast and easy search ...
A differentiator for PCORnet® has always been its ability to capture insights on diverse populations that clinical research studies often miss—and now that diversity is about to get even more robust. PCORI approved funding for the addition of 16 sites to expand the reach of the eight PCORnet® Clinical Research Networks (CRNs), a move that underscores PCORI’s continuing investment in ...
