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- Rare Disease Day Shines a Light on Lennox-Gastaut Syndrome Research Powered by PCORnet® February 28, 2025Each year on the last day of February, Rare Disease Day raises awareness for the more than 30 million people in the U.S. living with rare diseases. In honor of Rare Disease Day, we are shining a spotlight on a ...
- Have You Ever Wondered What Kind of Research PCORnet® Can Power? February 17, 2025Join our upcoming Best Practice Sharing Sessions to get inspired! On March 19 at 12:00 p.m. ET, we’ll explore the operational strategies and lessons learned from ACTIV-6, a PCORnet® Study.
ACTIV-6 was a decentralized platform trial that leveraged the PCORnet infrastructure to study repurposed medications ...
- Two Recent Data Reports Show that PCORnet® May Potentially Power Impactful Research into Mental and Behavioral Health and Pediatric Populations February 11, 2025Two recent data reports are providing researchers and the public with insights into the PCORnet® infrastructure. These reports offer topic-specific snapshots of the extensive, real-world patient data available through PCORnet® Clinical Research Networks (CRNs), helping research teams to refine research ...
- A New Year, a New Era of Patient-Centered Health Research Powered by PCORnet® January 30, 2025In December 2024, the Patient-Centered Outcomes Research Institute (PCORI) approved $134 million in funding for Phase 4 of PCORnet, reaffirming its commitment to advancing patient-centered comparative clinical effectiveness research (CER). This new funding will drive innovative developments, expanding the PCORnet ...
- PCORI Approves $134 Million to Bolster the Infrastructure of PCORnet® January 2, 2025The Patient-Centered Outcomes Research Institute (PCORI) recently approved $134 million for a fourth phase of funding for PCORnet®. This funding will provide continued support for eight PCORnet® Clinical Research Networks (CRNs) and the Coordinating Center for PCORnet®, demonstrating PCORI’s continued ...
- ‘Haven’t We Always Done This?’ Greg Merritt’s Journey to Normalize Patient Partnership in National-Scale Research December 17, 2024When Greg Merritt, a Patient Partner on the PCORnet® Steering Committee, first learned about the ADAPTABLE study in 2016, he was stunned. As a heart attack survivor who had been taking aspirin since 2012, he couldn’t believe that researchers were ...
- PCORnet® Study Shows Digital Interventions May Help Reduce Early Childhood Obesity November 25, 2024
Results from the Greenlight Plus Study were recently published in JAMA, demonstrating that adding a digital component to pediatric counseling could effectively reduce obesity in children. Conducted across two PCORnet® Clinical Research Networks, INSIGHT and STAR, the study involved families ...
- Leverage PCORnet® to Advance Pain Research with New PCORI Funding Opportunity November 6, 2024
A PCORI funding opportunity is opening new pathways to solutions for the millions of people in the U.S. whose quality of life is limited by pain. With up to $12 million in direct costs available for patient-centered studies addressing acute ...
- New Paper Explores the Power of PCORnet® to Enhance Health Surveillance September 24, 2024A new paper published in the journal Preventing Chronic Disease highlights the pivotal role of PCORnet® in transforming national health surveillance.
Surveillance, which involves collecting and analyzing health data from various sources to track the spread of diseases, monitor health trends, and ...
- PCORnet Leaders Highlight Transformative Research at ARM 2024: Five Key Takeaways August 5, 2024The AcademyHealth Annual Research Meeting (ARM) 2024 offered the opportunity to share some of the unique features of PCORnet®, with leaders highlighting how the multi-stakeholder ecosystem has enhanced researchers’ capacity to conduct national-scale comparative clinical effectiveness research (CER). The panel ...
Each year on the last day of February, Rare Disease Day raises awareness for the more than 30 million people in the U.S. living with rare diseases. In honor of Rare Disease Day, we are shining a spotlight on a ...
Join our upcoming Best Practice Sharing Sessions to get inspired! On March 19 at 12:00 p.m. ET, we’ll explore the operational strategies and lessons learned from ACTIV-6, a PCORnet® Study.
ACTIV-6 was a decentralized platform trial that leveraged the PCORnet infrastructure to study repurposed medications ...
Two recent data reports are providing researchers and the public with insights into the PCORnet® infrastructure. These reports offer topic-specific snapshots of the extensive, real-world patient data available through PCORnet® Clinical Research Networks (CRNs), helping research teams to refine research ...
In December 2024, the Patient-Centered Outcomes Research Institute (PCORI) approved $134 million in funding for Phase 4 of PCORnet, reaffirming its commitment to advancing patient-centered comparative clinical effectiveness research (CER). This new funding will drive innovative developments, expanding the PCORnet ...
The Patient-Centered Outcomes Research Institute (PCORI) recently approved $134 million for a fourth phase of funding for PCORnet®. This funding will provide continued support for eight PCORnet® Clinical Research Networks (CRNs) and the Coordinating Center for PCORnet®, demonstrating PCORI’s continued ...
When Greg Merritt, a Patient Partner on the PCORnet® Steering Committee, first learned about the ADAPTABLE study in 2016, he was stunned. As a heart attack survivor who had been taking aspirin since 2012, he couldn’t believe that researchers were ...
Results from the Greenlight Plus Study were recently published in JAMA, demonstrating that adding a digital component to pediatric counseling could effectively reduce obesity in children. Conducted across two PCORnet® Clinical Research Networks, INSIGHT and STAR, the study involved families ...
A PCORI funding opportunity is opening new pathways to solutions for the millions of people in the U.S. whose quality of life is limited by pain. With up to $12 million in direct costs available for patient-centered studies addressing acute ...
A new paper published in the journal Preventing Chronic Disease highlights the pivotal role of PCORnet® in transforming national health surveillance.
Surveillance, which involves collecting and analyzing health data from various sources to track the spread of diseases, monitor health trends, and ...
The AcademyHealth Annual Research Meeting (ARM) 2024 offered the opportunity to share some of the unique features of PCORnet®, with leaders highlighting how the multi-stakeholder ecosystem has enhanced researchers’ capacity to conduct national-scale comparative clinical effectiveness research (CER). The panel ...
