PCORnet’s Story

The mission of PCORnet, the National Patient-Centered Clinical Research Network, is to support patient-centered and data enabled clinical research to deliver results that matter, faster.  PCORnet envisions a sustainable Network that supports patient-centered research and answers questions important to patients, caregivers, clinicians, and the broader healthcare community.

PCORnet harnesses the power of health information (EHRs, claims data, registry data) to enable research to be conducted more efficiently and with greater power than previously possible. It originated with, and evolved through funding support from the Patient-Centered Outcomes Research Institute (PCORI) to develop a range of useful resources and partnerships.

The key elements of PCORnet are displayed below.  This Network of Networks is governed by a Steering Committee, which contains patient representatives and leaders from PCORnet’s constituent organizations – 9 clinical research networks, 2 health plan research networks, coordinating centers, the People-Centered Research Foundation (the Central Office for PCORnet), and its main funder, PCORI.

Steering Committee

The policy-making body for PCORnet.

Tom Carton Headshot
Thomas Carton
Clinical Research Network Principal Investigator
Henry Cruz Headshot
Henry Cruz
Patient Representative
Donna Cryer Headshot
Donna Cryer
Interim Executive Director
Christopher Forrest Headshot
Christopher Forrest
Clinical Research Network Principal Investigator
Kevin Haynes Headshot
Kevin Haynes
Health Plan Research Network Principal Investigator
Adrian Hernandez Headshot
Adrian Hernandez
Coordinating Center Principal Investigator
Rainu Kaushal Headshot
Rainu Kaushal
Clinical Research Network Principal Investigator
Abel Kho Headshot
Abel Kho
Clinical Research Network Principal Investigator
Kiely Law
Kiely Law
Patient Representative
Kathleen McTigue Headshot
Kathleen McTigue
Clinical Research Network Principal Investigator
Vinit Nair Headshot
Vinit Nair
Health Plan Research Network Principal Investigator
Rich Platt Headshot
Rich Platt
Coordinating Center Principal Investigator
Jon Puro Headshot
Jon Puro
Clinical Research Network Principal Investigator
Russell Rothman Headshot
Russell Rothman
Clinical Research Network Principal Investigator
Elizabeth Shenkman Headshot
Betsy Shenkman
Clinical Research Network Principal Investigator
Sharon Terry Headshot
Sharon Terry
Coordinating Center Principal Investigator
Russ Waitman Headshot
Russ Waitman
Clinical Research Network Principal Investigator
Neely Williams Headshot
Neely Williams
Patient Representative
Maryan Zirkle
Ex-officio Member

PCORnet Clinical Research Networks (CRNs) and Health Plan Research Networks (HPRNs)

CRNs are networks that originate in healthcare systems, such as hospitals, health plans, or practice-based networks, and securely collect health information during the routine course of patient care. HPRNs are composed of U.S. health plans collaborating with CRNs to link health insurance claims data with data from the CRNs’ electronic health records and other sources of data.

 

ADVANCE Collaborative Logo

ADVANCE


Principal Investigator:

Jon Puro

CAPRriCORN Network Logo

CAPriCORN


Principal Investigator:

Abel Kho

GPC Greater Plains Collaborative Logo

GPC


Principal Investigator:

Russ Waitman

HealthCore Logo

HealthCore


Principal Investigator:

Kevin Haynes

NYC-CDRN New York City Clinical Data Research Network Logo

INSIGHT


Principal Investigator:

Rainu Kaushal

OneFlorida Clinical Research Consortium Logo

OneFlorida


Principal Investigator:

Betsy Shenkman

PaTH Network patient empowered research logo

PaTH


Principal Investigator:

Kathleen McTigue

PEDSnet A Pediatric Learning Health System Logo

PEDSnet


Principal Investigator:

Christopher Forrest

Practice Research Network Logo

PRACnet (Humana)


Principal Investigator:

Vinit Nair

REACHnet Research Action for Health Network Logo

REACHnet


Principal Investigator:

Thomas Carton

STAR


Principal Investigator:

Russell Rothman

PCORnet Coordinating Center

The PCORnet Coordinating Center is composed of three organizations working to lead the network’s data and engagement activities and support the overall network infrastructure.

Duke Clinical Research Institute


Principal Investigators:

Adrian Hernandez

Genetic Alliance


Principal Investigator:

Sharon Terry

Harvard Pilgrim Health Care Institute


Principal Investigator:

Richard Platt

The People-Centered Research Foundation (PCRF), the Central Office for PCORnet

PCRF is the Central Office for PCORnet and was formed by PCORnet Network Partners as an independent, non-profit organization to sustain PCORnet.