Join us for the next PCORnet® Best Practice Sharing Session to discover the impactful research PCORnet can power!
May 22 Best Practice Sharing Session
- Date: Wednesday, May 22
- Time: 2:00 pm ET
This session will spotlight the PCORnet® Study: “Utilizing PCORnet to support transition from pediatric to adult centered care and reduce gaps in recommended care in patients with congenital heart disease.”
Part of the broader Congenital Heart Initiative: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON), the study characterizes gaps in care for this population and examines the impact of gaps in recommended care on outcomes important to individuals with congenital heart disease and those that provide care for them.
Featured Speakers:
- Anitha John, MD, PhD – Children’s National
- Thomas Carton, PhD, MS – Louisiana Public Health Institute
They will share valuable insights and lessons learned for building a patient-centered, comparative clinical effectiveness research infrastructure for a heterogeneous group of rare diseases by linking registry, electronic health record, and health insurance claims data across 12 institutions participating in PCORnet.
What Are Best Practice Sharing Sessions?
These monthly forums bring together researchers, clinicians, and community members to exchange ideas, improve methods and explore innovative uses of the PCORnet infrastructure to advance health research.
Who Can Join?
The sessions are open to the public. Anyone interested in leveraging the PCORnet infrastructure for health research is welcome.
To receive a calendar invite, email [email protected].