A National Health & Research Data Resource
Connect with us
Subscribe to receive the newsletter via email.
Complete the Front Door form.
Follow @PCORnetwork on Twitter.
Welcome to the inaugural issue of News Powered by PCORnet®. Here, you will find a quarterly snapshot showing how researchers are using the Network to surface fast, trustworthy answers that advance health outcomes for all communities—even those that are typically underrepresented in research. Whether you’re looking for use cases for inspiration, research resources, or the latest publications of PCORnet-powered research, you’ve come to the right place.
Knock on the PCORnet® Front Door to Begin Collaborating with the Network
If you’re wondering how PCORnet can support your research project, it’s time to visit the PCORnet® Front Door As the access point for PCORnet resources and infrastructure, the PCORnet® Front Door is your first step toward meaningful collaboration with research professionals who are ready to help you surface insights from PCORnet-accessible data and improve your study design with patient and stakeholder feedback. The PCORnet® Front Door can support you from conceptualization to completion of your research projects, trials, and observational studies. This resource is available for everyone, including investigators, patient groups, healthcare organizations, government and industry scientists, and research sponsors.
Learn more about the Front Door
(Almost) 10 Years of PCORnet: Reflecting on the Network's Growth and Looking Ahead
PCORnet stakeholders and leadership team members recently gave a National Institutes of Health (NIH) Collaboratory Grand Rounds webinar presentation on the near decade of research powered by PCORnet, including key accomplishments and the evolution of the Network. The presentation featured thoughtful commentary on Network successes from Erin Holve, chief Research Infrastructure officer at PCORI; Russell Rothman, PCORnet Executive Committee chair and STAR Clinical Research Network (CRN) principal investigator; Schuyler Jones, associate professor of Medicine and Population Health Sciences at Duke University and STAR CRN co-principal investigator; and Neha Pagidipati, associate professor of Medicine at Duke University.
Five Ways Patients Win with PPRL In PCORnet
Electronic health records (EHRs), administrative claims databases, and other patient data are important sources of healthcare information that can be used for research. However, they live in separate systems, which means researchers typically can’t easily combine insights to understand a complete picture of the patient experience. These sources also contain sensitive information that must be protected. To address this challenge, PCORnet leaders have embraced a technique called privacy-preserving record linkage (PPRL) to link records from different databases while protecting the privacy of patients.
Rigorous Patient Privacy + Connected Insights: With PPRL, PCORnet Researchers Can Have The Best Of Both
Two recent manuscripts published in the journal BMC Research Notes and JAMIA describe the framework and implementation of a new method of connecting patient data across disparate healthcare ecosystems in PCORnet while maintaining the highest levels of privacy and security. Privacy-preserving record linkage, or PPRL, connects electronic health records and administrative claims databases, unlocking the ability to fill important gaps in data, while still making sure the private information stays protected.
Visit the PCORnet Newsroom
PCORI Funding Opportunity Calls for Study Proposals that Tap PCORnet Resources
Beginning in Cycle 2 of 2023, PCORI is excited to announce the addition of a Category 3 to its Broad Pragmatic Studies funding opportunity. The new Category 3 will support PCORnet Studies that advance PCORI’s National Priorities for Health using PCORnet. Category 3 will support awards with direct costs of up to $10 million. PCORnet is publicly accessible to all investigators at no cost through the PCORnet® Front Door.
Workshop Registration Now Open: A Quick-Start Guide to Using PCORnet®
PCORnet infrastructure offers high-quality health data, patient partnerships, and research expertise that may be able to optimize your study. Are you interested in leveraging these benefits, but not sure where to begin? On June 27, PCORI and PCORnet Network Partners will host a workshop giving practical advice for using resources available through the PCORnet® Front Door, identifying potential collaborators across the Network, and broadening your understanding of PCORI’s funding opportunities for research that uses PCORnet resources. This free, hands-on workshop is an adjunct event following the conclusion of AcademyHealth’s 2023 Annual Research Meeting in Seattle, Washington.
Don’t miss this unique opportunity to learn how you can kick-start your next study using PCORnet resources. Learn more, and register today!
PCORnet is comprised of eight large Clinical Research Networks (CRNs) and a Coordinating Center. These Network Partners unite to offer vast, highly representative health data, research expertise, and patient insights that can make research better, faster, and more centered on the needs of patients than was previously possible. Here, you can get to know the individual Network Partners and access key resources to support your research.
Are you interested in learning what access to insights from everyday encounters with more than 30 million people across the U.S. can offer your study? We are here to help. Reach out through the PCORnet® Front Door, the access point for all PCORnet resources.
PCORnet®is intended to improve the nation’s capacity to efficiently conduct patient-centered health research, particularly comparative clinical effectiveness research (CER), by providing a large, highly representative network of health data, research expertise, and patient insights. PCORnet® has been developed with funding from the Patient-Centered Outcomes Research Institute (PCORI®).