A National Health & Research Data Resource for Patient-Centered Clinical Comparative Effectiveness Research
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Past Issues
Featured In This Issue:
- Apply: PCORI Announces Funding for Cycle 1 2024 Broad Pragmatic Studies Category
- Accelerate Your Research! New Tools Powered by PCORnet Can Speed Your Study Start-up
- Access Insights: Public Query Data Reports Now Available for Telehealth and Intellectual and Developmental Disabilities Research
- Learn: The Decade-long Impact of PCORnet Lauded at PCORI Annual Meeting
- Check It Out: The Latest Published Insights from Studies Using PCORnet Resources
- Reflect: End of Year Message from PCORnet® Network Partners
Apply: PCORI Will Fund up to $10M for Broad Pragmatic Studies in Early 2024
In early 2024, PCORI will release a Category 3 Broad Pragmatic Studies (BPS) funding announcement for researchers interested in using PCORnet® for patient-centered comparative clinical effectiveness research (CER). This BPS Category 3 funding opportunity supports PCORnet® Studies with direct costs up to $12 million.* PCORnet® Studies use the Network to conduct observational studies and/or pragmatic trials that are national in scale.
This PCORI Funding Announcement (PFA) opens January 9. Letters of Intent (LOI), a requirement for PCORI funding, are due February 6. Take these three steps to prepare:
- Register for the January 24 PCORI Applicant Town Hall to learn more about this PFA and how to submit a responsive LOI and application.
- Check out this webinar for an overview of PCORnet and the specific requirements for the Category 3: PCORnet®Studies option in the BPS PFA.
- Contact the PCORnet® Front Door. All applicants submitting to the BPS Category 3 PFA are required to contact the PCORnet® Front Door prior to submitting their LOI. PCORnet representatives will answer questions and help applicants complete the queries necessary for their applications. The PCORnet® Front Door also offers study feasibility review, including assistance with budgeting, research proposals, information on potential study sites for research participation, data sources, and more.
*Funding for innovations to support CER, such as novel approaches to returning results to participants and the use of Fast Healthcare Interoperability Resources (FHIR) technologies to engage, may be requested in the LOI phase.
Accelerate Your Research! New Tools Powered by PCORnet Can Speed Your Study Start-up
Reduce start-up time with four new tools powered by PCORnet to make study planning, design, contracting, and execution more efficient.
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Data Sharing Agreement (DSA) speeds prep-to-research queries.- Clinical Research Collaboration Agreement speeds the contracting process for PCORI-funded studies.
- SMART IRB and IREx List supports fast and easy search of crucial details about PCORnet-participating sites.
- Data Study Flow Resources facilitates fast and consistent IRB applications in your PCORnet-leveraged study.
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These four tools were designed to help researchers address some of the most time-consuming, costly, and difficult aspects of study start-up. Using these tools and established PCORnet partnerships can make your next national-scale study more efficient.
Read the full story here.
Access Insights: Public Query Data Reports Now Available for Telehealth and Intellectual and Developmental Disabilities Research
Two new query data reports powered by PCORnet resources can help Network researchers conduct robust patient-centered CER. These query reports, developed and processed through the PCORnet® Front Door, demonstrate the power of PCORnet to help researchers glean more diverse, real-world insights for their studies.
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- Telehealth Query Report: A new telehealth query report explores the use of telehealth services among patients at sites
participating in PCORnet. Researchers can leverage this report to identify disparities in telehealth delivery, trends both pre- and post-COVID-19, and insights into how underserved populations used telehealth services to manage chronic conditions throughout the pandemic. - Intellectual and Developmental Disabilities (IDD) Query Report: A new IDD query report is also available to help researchers draw insights on patients with intellectual and developmental disabilities who had a healthcare encounter at a site participating in PCORnet. This query is the largest known, national-scale descriptive analysis of IDD populations using electronic health record (EHR) data to date.
- Telehealth Query Report: A new telehealth query report explores the use of telehealth services among patients at sites
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Both the telehealth and IDD query reports are accessible now to researchers conducting patient-centered CER. Check them out today!
Learn: The Decade-long Impact of PCORnet Lauded at PCORI Annual Meeting
PCORnet was a hot topic at the 2023 PCORI Annual Meeting. Every year, the event brings together researchers, clinicians, patients, and other partners across the healthcare ecosystem who are passionate about advancing patient-centered comparative clinical effectiveness research (CER). This year’s plenary session titled “Powered by PCORnet: Infrastructure to Fuel National-Scale Research” gave attendees a snapshot of some of the most impactful research that the Network has powered over its 10-year history.
Read the full story.
The Latest Published Insights from Studies Using PCORnet Resources
Check out the most recent publications from study teams using the PCORnet infrastructure.
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- Association Between Hypertension and Diabetes Control and COVID-19 Severity: National Patient-Centered Clinical Research Network, United States, March 2020 to February 2022.
- Avenues for Strengthening PCORnet Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research (PCOR).
- The Preserving Kidney Function in Children with CKD (PRESERVE) Study: Rationale, Design, and Methods.
There is no doubt that 2023 has been a year of strong progress for patient-centered CER, unlocking many new insights that matter to communities and improve patient lives. This holiday season let's take a moment to celebrate that progress and commit to maintaining the momentum throughout 2024 and beyond. To the patients, researchers, and other communities who continue to make patient-centered CER possible: thank you. Stay tuned in early 2024 for even more robust PCORnet-accessible data that will continue to close gaps in research and help patients live better, healthier lives. Here’s to a safe and happy holiday season, and a prosperous New Year for all!
Are you interested in learning what access to insights from encounters with more than 30 million people across the U.S. can offer your study? PCORnet is here to help. Reach out through the PCORnet® Front Door, the access point for all PCORnet resources.
PCORnet® is intended to improve the nation’s capacity to efficiently conduct patient-centered health research, particularly clinical comparative effectiveness research (CER), by providing a large, highly representative network of health data, research expertise, and patient insights. PCORnet® has been developed with funding from the Patient-Centered Outcomes Research Institute (PCORI®).