Datavant Collaboration: Privacy-Preserving Record Linkage and Network Enablement

May 6, 2026
12 pm – 1 pm (ET) 

Please join the Coordinating Center for PCORnet® for a Best Practices Sharing Session on Wednesday, May 6, 12-1pm ET, focused on how Datavant supports collaboration across PCORnet. Our guest speakers for this webinar are from Datavant:

  • Claire Manneh, Sr. Practice Lead for Provider Research Institutions
  • Alyna Dada, Strategic Engagement Lead for Provider Research Institutions

Since 2019, Datavant has served as a secure connectivity layer for PCORnet, supporting 78 PCORnet® network partners across eight PCORnet® Clinical Research Networks (CRNs) through privacy-preserving record linkage and network enablement.

This session will provide an overview of Datavant’s engagement with PCORnet, including how CRNs can collaborate with Datavant on research projects, pathways for partnership, and how Datavant can support network-wide connectivity. The presentation will also highlight Datavant’s core offerings, including privacy-preserving record linkage, Datavant Connect for partnership discovery, and capabilities that enable scalable, multi-site research and real-world evidence generation.

Please contact the [email protected] for a calendar invite.

Empowering Multi-Site Studies via Federated Learning Using Privacy-Preserving Distributed Algorithms (PDA)

April 22, 2026
12 pm – 1 pm (ET) 

Please join the Coordinating Center for PCORnet® for a Best Practices Sharing Session on Wednesday, April 22, 12-1pm ET. Our guest speaker for this webinar is Dr. Yong Chen, Professor of Biostatistics at Department of Biostatistics, Epidemiology, and Informatics at the University of Pennsylvania Perelman School of Medicine.

Dr. Chen’s presentation is titled, “Empowering Multi-Site Studies via Federated Learning Using Privacy-Preserving Distributed Algorithms (PDA).” He will present a practical overview of Privacy-Preserving Distributed Algorithms (PDA) for federated learning across multi-institutional networks. The session will highlight how PDA enables association, causal, and subphenotyping analyses without sharing individual-level patient data, drawing on real-world deployments within PCORnet, OHDSI, and other national research networks.

Please contact the [email protected] for a calendar invite.

A Clinical Trial Readiness Study of Clinical Outcome Assessments in TTP (THINK-TTP)

March 25, 2026
12 pm – 1 pm (ET) 

Please join the Coordinating Center for PCORnet® for a Best Practices Sharing Session on Wednesday, March 25th, 12-1 PM ET. The guest speakers for this webinar are Theresa Coles, PhD and Toyosi Onwuemene, MD, MS from Duke University School of Medicine.

This webinar will feature the PCORnet® Study entitled “A Clinical Trial Readiness Study of Clinical Outcome Assessments in TTP (THINK-TTP).” The speakers will describe how the study will identify reliable, valid, and responsive cognitive function assessments for use in TTP trials, and how the study’s approach to identifying measures—and sharing results publicly—will drive trial readiness and support patient-centered treatment development.

Please contact the [email protected] for a calendar invite.

 

Patient-Reported Outcomes (PROs) Tools and Resources in Clinical Care, Research, and Real-World Evidence

February 18, 2026
1 pm – 2 pm (ET) 

Please join the Coordinating Center for PCORnet® for a Best Practices Sharing Session on Wednesday, February 18th from 1:00-2:00 PM ET. The guest speakers for this webinar are:

Claire Snyder, PhD
Norah Crossnohere, PhD
Anne Schuster, PhD
Keith Marsolo, PhD

Dr. Snyder is from Johns Hopkins School of Medicine, and Drs. Crossnohere and Schuster are from The Ohio State University College of Medicine; they lead the PROTEUS Consortium. They will share tools and resources from the PROTEUS Consortium for capturing and communicating patient-reported outcomes (PROs) in clinical care and for research, as well as opportunities to use PROs for real-world evidence.

Dr. Marsolo, from the Duke Clinical Research Institute, will describe efforts to work with sites participating within PCORnet to load PROs into their local PCORnet® Common Data Models. The session will conclude with an interactive discussion regarding approaches to further strengthen the integration of PROs in PCORnet.

Please contact the [email protected] for a calendar invite.

 

Urinary Stone Disease Hub (USDHub): Community Research for Nephrolithiasis Research

January 15, 2026
2 pm – 3 pm (ET)  

Please join the Coordinating Center for PCORnet® for a Best Practices Sharing Session on Thursday, January 15th, 2-3 PM ET. The guest speaker for this webinar is Ryan Hsi, MD, Associate Professor of Urology from University of California, Irvine.

In this webinar, Dr. Hsi will provide an overview of the NIH-funded PCORnet® Study entitled “Urinary Stone Disease Hub (USDHub): Community Research for Nephrolithiasis Research,” including lessons learned for integrating expertise across sites and disciplines within and outside of PCORnet teams to produce an impactful and novel resource.

Please contact the [email protected] for a calendar invite.

Assessing and Improving Research Readiness

November 20, 2025
2 pm – 3 pm (ET)  

This event has ended.

Join us for a Best Practice Sharing Session, Assessing and Improving Research Readiness, to learn about the evolution of the foundational data quality process developed and used by the Coordinating Center for PCORnet® and PCORnet® Clinical Research Networks, and share best practices for using transparent, collaborative approaches to improve research readiness.

Speakers include:

  • Laura Qualls, MS
  • Darcy Louzao, PhD
  • Keith Marsolo, PhD