Partner Networks

PCORnet is made up of Partner Networks—13 Clinical Data Research Networks (CDRNs), based in healthcare systems such as hospitals, integrated delivery systems, and federally qualified health centers, 20 Patient-Powered Research Networks (PPRNs), operated and governed by groups of patients and their partners, and 2 Health Plan Research Networks (HPRNs), actively engaged in partnering to link claims data with Electronic Health Record (EHR) data. PCORnet also currently has one Affiliated Network; to learn more, read the PCORnet Policy for Affiliate Network Status.

Accelerating Data Value Across a National Community Health Center Network (ADVANCE)

OCHIN

CDRN

ABOUT Patient-Powered Research Network (ABOUT Network)

UNIVERSITY OF SOUTH FLORIDA

PPRN

ARthritis patient Partnership with comparative Effectiveness Researchers (AR-PoWER PPRN)

GLOBAL HEALTHY LIVING FOUNDATION

PPRN

CCFA Partners Patient Powered Research Network (CCFA)

CROHN’S & COLITIS FOUNDATION

PPRN

Chicago Area Patient Centered Outcomes Research Network (CAPriCORN)

THE CHICAGO COMMUNITY TRUST

CDRN

Collaborative Patient-Centered Rare Epilepsy Network (REN)

REN INCLUDES OVER 25 RARE EPILEPSY ORGANIZATIONS

PPRN

Community Partnered Participatory Research Network (CPPRN)

UNIVERSITY OF CALIFORNIA LOS ANGELES

PPRN

Community-Engaged Network for All (CENA)

GENETIC ALLIANCE

PPRN

COPD Patient Powered Research Network (COPD)

COPD FOUNDATION

PPRN

DuchenneConnect Patient-Report Registry Infrastructure Project (DuchenneConnect)

PARENT PROJECT MUSCULAR DYSTROPHY

PPRN

Greater Plains Collaborative (GPC)

UNIVERSITY OF KANSAS MEDICAL CENTER

CDRN

Health eHeart Alliance (Health eHeart)

UNIVERSITY OF CALIFORNIA, SAN FRANCISCO (UCSF)

PPRN

ImproveCareNow: A Learning Health System for Children with Crohn’s Disease and Ulcerative Colitis (ImproveCareNow)

CINCINNATI CHILDREN’S HOSPITAL MEDICAL CENTER

PPRN

Interactive Autism Network (IAN)

KENNEDY KRIEGER INSTITUTE

PPRN

Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL)

KAISER FOUNDATION RESEARCH INSTITUTE

CDRN

Mid-South Clinical Data Research Network (Mid-South)

VANDERBILT UNIVERSITY

CDRN

Mood Patient-Powered Research Network (MoodNetwork)

MASSACHUSETTS GENERAL HOSPITAL

PPRN

Multiple Sclerosis Patient-Powered Research Network (MS-PPRN)

ACCELERATED CURE PROJECT FOR MULTIPLE SCLEROSIS

PPRN

National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN)

MAYO CLINIC

PPRN

NephCure Kidney Network for Patients with Nephrotic Syndrome (NKN)

ARBOR RESEARCH COLLABORATIVE FOR HEALTH

PPRN

New York City Clinical Data Research Network (NYC-CDRN)

WEILL CORNELL MEDICINE

CDRN

OneFlorida Clinical Data Research Network (OneFlorida)

UNIVERSITY OF FLORIDA

CDRN

Patient-Centered Network of Learning Health Systems (LHSNet)

MAYO CLINIC

CDRN

Patient-centered SCAlable National Network for Effectiveness Research (pSCANNER)

UNIVERSITY OF CALIFORNIA, SAN DIEGO (UCSD)

CDRN

PaTH: Towards a Learning Health System in the Mid-Atlantic Region (PaTH)

UNIVERSITY OF PITTSBURGH

CDRN

Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS)

DUKE UNIVERSITY

PPRN

PEDSnet: A Pediatric Learning Health System (PEDSnet)

THE CHILDREN’S HOSPITAL OF PHILADELPHIA

CDRN

Phelan-McDermid Syndrome Data Network (PMS_DN)

PHELAN-MCDERMID SYNDROME FOUNDATION

PPRN

PI Patient Research Connection
(PI CONNECT)

IMMUNE DEFICIENCY FOUNDATION

PPRN

Population Research in Identity and Disparities for Equality Patient-Powered Research Network (PRIDEnet)

UNIVERSITY OF CALIFORNIA SAN FRANCISCO

PPRN

Research Action for Health Network (REACHnet)

LOUISIANA PUBLIC HEALTH INSTITUTE (LPHI)

CDRN

Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS)

HARVARD UNIVERSITY

CDRN

Sleep Apnea Patient Centered Outcomes Network (SAPCON)

BRIGHAM AND WOMEN’S HOSPITAL

Affiliate PPRN

Vasculitis Patient Powered Research Network (V-PPRN)

UNIVERSITY OF PENNSYLVANIA

PPRN

Last updated on November 6, 2017