Knowledge Repository

Explore resources for improving research through better practices

Data

Improve the quantity and quality of data used in your study with innovative resources and tools.

Engagement

Search best practices for engaging a variety of stakeholders throughout the research process.

Research

Explore innovative tools and models that can be used throughout every stage of your research project.

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Resource Type: Evaluation, Checklist
Audience: Researchers, Clinicians, Hospitals and Health Systems

Research Readiness Snapshot

The Research Readiness Snapshot is a brief self-assessment and planning tool that helps PCORnet partner sites document their current capacity to participate in PCORnet research and identify strengths, gaps, and priorities for growth. It guides sites to review their latest…
Research
Resource Type: Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Research Review and Prioritization Group (RRPG) Researcher Template Deck

This RRPG Researcher Template Deck can help investigators prepare presentations for a research review. The template outlines required study information, including grant status and site-specific requests. The completed slides can be provided prior to a…
Research
Resource Type: Template, Standard Operating Procedure
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Interim Progress Report (IPR) Project Management Status Tracker

This Interim Progress Report (IPR) Project Management Status Tracker can help study teams divide IPRs into sections for better task distribution. It refers to previously submitted IPRs and is structured so instructions for each section…
Research
Resource Type: Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Investigator Collaboration Request Form

Researchers interested in collaborating with clinical research network (CRN) sites can use an Investigator Collaboration Request Form. The Collaboration Request Form collects current study status, inclusion/exclusion criteria, a site-specific scope of work, benefits for sites,…
Research
Resource Type: Template, Guide, Governance
Audience: Researchers, Clinicians, Hospitals and Health Systems

PCORnet Focused Data Elements Addition Proposal for Centralized Networks

This document provides a template to request sites to share PCORnet data elements. The guide includes details such as the impact of adding the data element for use in research projects, as well as the…
Research
Resource Type: Template, Guide, Governance
Audience: Researchers, Clinicians, Hospitals and Health Systems

Local Studies Standard Operating Procedure

The Local Studies Standard Operating Procedure (SOP) can be used for the documentation of the process involved in the intake and management of studies entering through a Clinical Research Network (CRN) Front Door. From the…
Research
Resource Type: Template
Audience: Researchers

Clinical Research Collaboration Agreement

Use this PCORnet-approved agreement to speed the contracting process for PCORI-funded studies. This pre-negotiated template agreement can serve as a starting point for prime and site investigator negotiations. The result is time-savings in the contracting…
Research
Resource Type: Checklist, Guide
Audience: Researchers

SMART IRB and IREx List

This form gives investigators and project teams a consolidated view of which sites participating in PCORnet maintain an IRB. It also provides the site Federal Wide Assurance (FWA) number and notates which sites have signed…
Research
Resource Type: Standard Operating Procedure, Plan, Governance
Audience: Hospitals and Health Systems, Researchers, Training Institutions

Scholars Program Processes and Procedures

The PaTH Scholars Program was established to help researchers gain the skills and confidence needed to lead and participate in multi-site “real-world evidence” studies by mentoring and engaging scholars through hands-on participation alongside experienced PaTH…
Research
Resource Type: Guide, Plan
Audience: Researchers, Hospitals and Health Systems, Clinicians, Industry, Payers, Patients

Rapid and Collaborative Response to COVID-19

Researchers responded rapidly and collaboratively to answer COVID-19 questions by using PCORnet resources including a flexible coordinating center, the PCORnet® Common Data Model, research-ready networks, and existing research studies that pivoted quickly. Researchers can use…
Research
Resource Type: Evaluation, Study Material
Audience: Patients, Clinicians, Researchers, Hospitals and Health Systems, Payers, Industry, Training Institutions

How Common are New Symptoms and Conditions After COVID-19? Results from PCORnet

Summary of the CDC’s research on symptoms experienced more than 4 weeks after first being infected with the virus that causes COVID-19. Researchers studied data from electronic health records of 1.8 million adults and 300,000…
Research
Resource Type: Presentation/Webinar, Guide
Audience: Researchers, Clinicians, Hospitals and Health Systems, Training Institutions

Scholars Program in Learning Health Systems Science

The PEDSnet Scholars Program is a set of 24 webinars that help build core competencies in Learning Health System science. Access the Scholars Program.
Research
Resource Type: Template, Guide
Audience: Researchers, Clinicians, Hospitals and Health Systems, Industry

Template: Welcome Guide for Participating Sites

This template was created by Kellie Walters, MPH, UNC-Chapel Hill, part of the STAR Network, as a welcome guide for PIs participating in PCORnet. It may be used as a framework for other networks. Access…
Research
Resource Type: Presentation/Webinar
Audience: Patients, Clinicians, Researchers, Hospitals and Health Systems, Payers, Industry, Policy Makers

Non-technical PCORnet Common Data Model Introduction

This slide deck was created by Kellie Walters, MPH, UNC-Chapel Hill, part of the STAR Network, to introduce the PCORnet Common Data Model to patient stakeholders. The slides can be repurposed for any non-technical audience.…
Research
Resource Type: Guide
Audience: Patients, Researchers, Industry

Recommendations for Future Projects

PCORnet Demonstration Project Meeting discussions resulted in this list of recommendations for future projects. Consider these recommendations when developing your own collaborative, people-centered research study. Access the resource here.
Research
Resource Type: Guide
Audience: Researchers, Clinicians, Hospitals and Health Systems, Industry

How can you contribute to scientific manuscripts?

At the request of our patient partners, the PaTH Clinical Research Network (CRN)/PCORnet Bariatric Study teams developed this FAQ resource to help partnering stakeholders understand how they can contribute to scientific manuscripts. It can be…
Research
Resource Type: Evaluation, Plan, Study Material, Template
Audience: Patients, Researchers, Hospitals and Health Systems

Evaluation Plan of a Research Study

This Evaluation Plan from the “PCORnet Obesity Observational Research Initiative,” was used to evaluate the different components of the research study. Use it as an example of how to evaluate your own research studies. Prepared…
Research
Resource Type: Governance, Policy, Standard Operating Procedure, Study Material
Audience: Researchers

Biorepository Task Force Resources – Informed Consent

The document provides guidance recommendations and strategies for biobank sustainability. Access the resource here.
Research