Strengthening Clinical Research Network Collaboration and Community Health Center Participation in PCORnet® Studies

September 26, 2025  
8 am – 4 pm (PT)  
Portland, OR  

This event has ended.  View the event summary report here.

ADVANCE CRN is hosting a regional information session in Portland, OR. This event is ideal for researchers, providers, and patients who want to learn more about the research capabilities enabled by PCORnet.

Upcoming Best Practice Session Highlights Lessons Learned from a Congenital Heart Initiative Study

Join us for the next PCORnet® Best Practice Sharing Session to discover the impactful research PCORnet can power!

May 22 Best Practice Sharing Session

  • Date: Wednesday, May 22
  • Time: 2:00 pm ET

This session will spotlight the PCORnet® Study: Utilizing PCORnet to support transition from pediatric to adult centered care and reduce gaps in recommended care in patients with congenital heart disease.”

Part of the broader Congenital Heart Initiative: Redefining Outcomes and Navigation to Adult-Centered Care (CHI-RON), the study characterizes gaps in care for this population and examines the impact of gaps in recommended care on outcomes important to individuals with congenital heart disease and those that provide care for them.

Featured Speakers:

  • Anitha John, MD, PhD – Children’s National
  • Thomas Carton, PhD, MS – Louisiana Public Health Institute

They will share valuable insights and lessons learned for building a patient-centered, comparative clinical effectiveness research infrastructure for a heterogeneous group of rare diseases by linking registry, electronic health record, and health insurance claims data across 12 institutions participating in PCORnet.

What Are Best Practice Sharing Sessions?

These monthly forums bring together researchers, clinicians, and community members to exchange ideas, improve methods and explore innovative uses of the PCORnet infrastructure to advance health research.

Who Can Join?

The sessions are open to the public. Anyone interested in leveraging the PCORnet infrastructure for health research is welcome.

To receive a calendar invite, email [email protected].

Workshop Registration Now Open: A Quick-Start Guide to Using PCORnet®

PCORnet® infrastructure offers high-quality health data, patient partnerships, and research expertise that may be able to optimize your study. Are you interested in leveraging these benefits, but not sure where to begin? On June 27, PCORI and PCORnet Network Partners will host a workshop giving practical advice for using resources available through the PCORnet® Front Door, identifying potential collaborators across the Network, and broadening your understanding of PCORI’s funding opportunities for research that uses PCORnet resources. This free, hands-on workshop is an adjunct event following the conclusion of AcademyHealth’s 2023 Annual Research Meeting in Seattle, Washington.

Don’t miss this unique opportunity to learn how you can kick-start your next study using PCORnet resources. Learn more, and register today!