October 14, 2022

PCORnet® Leaders Will Share Network Success, Future Priorities at 2022 PCORI Annual Meeting

The 2022 PCORI Annual Meeting is fast approaching on October 26-27, and PCORnet®, the National Patient-Centered Clinical Research Network, will be featured prominently across the two-day event as PCORI’s premier health data infrastructure investment. This virtual meeting will bring together researchers, clinicians, patients, and other stakeholders across the healthcare ecosystem. It highlights the progress of PCORI’s funding initiatives, including PCORnet, which help determine what care approaches work best, for whom, and under what circumstances.

Registration is free, providing easy access to all the insights, data, and other useful information and experiences that will be shared. Here are PCORnet-featured sessions you won’t want to miss: 

Name Type Date Description
PCORnet®-Enabled Responses to COVID-19 Breakout Session featuring:

Thomas Carton
Rainu Kaushal
Adrian Hernandez
Florence Thicklin
Susanna Naggie

October 26

1:15 PM-2:15 PM ET

The session will focus on results related to three active PCORnet-leveraged projects funded by federal health agencies: the Accelerating COVID-19 Therapeutic Interventions and Vaccines-6 (ACTIV-6) trial, the Researching COVID to Enhance Recovery (RECOVER) trial, and a Centers for Disease Control and Prevention-funded COVID-19 surveillance project.
PCOR Infrastructure to Accelerate Progress Toward an Integrated Learning Health System (LHS) Breakout Session featuring:

Kathleen McTigue
Issa Dahabreh
Erin Holve
Meghan Lane-Fall

October 27

10:00 AM-11:00 AM ET

This session will explore efforts to support LHS models and contemplate innovations in data and technology approaches, workforce development, and methodologies essential to achieving an integrated LHS vision. The session will also describe how PCORI is developing internal continuous learning mechanisms to develop the role of a funder in an integrated LHS. 
HERO Registry: Strategies and Resets to Diversify Engagement and Recruitment through Representative Stakeholders’ Involvement and Focused Outreach Poster Presentation featuring:

Renee Leverty

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM- 11:45 AM ET

An exploration of the best strategies and resets to diversify engagement and recruitment through representative stakeholders’ involvement and focused outreach.
PCORnet®, The National Patient-Centered Clinical Research Network: Priorities for the PCORnet Coordinating Center: 2022 and Beyond Poster Presentation featuring:

Lauren Cohen
Jenny Cook

 

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

 

 

What’s coming next for PCORnet? This presentation offers a glimpse into the future of PCORnet’s Coordinating Center priorities for 2022 and beyond.
Vaccination for COVID-19: Perspectives from the Healthcare Worker Exposure Response and Outcomes (HERO) Community Over 2 years of the COVID-19 Pandemic 2020-2022 Poster Presentation featuring:

Lauren Cohen

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

 

The PCORnet-supported HERO community has been an essential resource for understanding COVID-19, including vaccination trends, over the past two years. This poster presentation will offer a glimpse into the perspectives gleaned from this community to inform current and future vaccine campaigns.
Developing and Implementing a Multi-Stakeholder System for Enabling Patient-Driven Research in Multiple Sclerosis via the iConquerMS Research Network Poster Presentation featuring:

Laura Kolaczowski

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

This poster will present the development of a robust process for participant-driven research (PDR) in multiple sclerosis (MS) via the iConquerMS People-Powered Research Network, including features of the iConquerMS.org portal, engagement of people affected by MS, and more.
Enhancing PCORnet® Clinical Research Network Data Completeness by Integrating Multistate Insurance Claims with Electronic Health Records Poster Presentation featuring:

 

Lemuel Russ Waitman

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM- 11:45 AM ET

PCORnet Clinical Data Research Networks capture healthcare use within their health systems, but may lack information on care received elsewhere in the community. This poster describes a reusable environment that integrates hospital and electronic health records data in the PCORnet Common Data Model with statewide Medicare and Medicaid claims. It also assesses how claims and clinical data complement each other to identify obesity and related diseases.
Does Interval Between Online Follow-Up Visits Affect Visit Completion, Medication Adherence, or Trial Completion Overall or in Age Subgroups? Poster Presentation featuring:

Jeff Whittle

October 26

10:15 AM 10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

Large pragmatic trials often use online approaches for follow-up. This poster explores the impact of the time interval between remote study visits on visit completion, medication adherence, and trial completion. The study team randomized participants in the ADAPTABLE trial to three- versus six-month intervals between follow-up visits to determine the impact of each interval.
Facilitating Peer-to-Peer Conversations Around Key Clinical Trial Recruitment Barriers in the Limit-JIA (Juvenile Idiopathic Arthritis) Trial Using Low-Fidelity Video Capture Poster Presentation featuring:

Melanie Kohlheim

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

In response to parents’ confusion about JIA treatment and fear around administering injections to their children, this poster shares research related to the best COVID-friendly strategies to break down or minimize these barriers.
Precision Cancer Survivorship Cohort: Developing a Cohort Using the OneFlorida+ Infrastructure Poster Presentation featuring:

Erin Mobley

October 26

10:15 AM-10:45 AM ET

 

October 27

11:15 AM-11:45 AM ET

This poster describes the development of the Precision Cancer Survivorship Cohort, which allows for the examination of factors associated with various constructs across the cancer survivorship continuum, with a particular focus on identifying issues of equity across age, race, ethnicity, and socioeconomic status.

 If you haven’t registered for the 2022 PCORI Annual Meeting, now is the time! Registration provides access to the sessions occurring live as well as the recorded webinars you can watch at your convenience. Don’t miss this exciting opportunity to learn what’s next for the future of patient-centered research.