Knowledge Repository

Explore resources for improving research through better practices

Data

Improve the quantity and quality of data used in your study with innovative resources and tools.

Engagement

Search best practices for engaging a variety of stakeholders throughout the research process.

Research

Explore innovative tools and models that can be used throughout every stage of your research project.

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Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Sensory Health Population Insights Report

This report describes the results of a data query of the patients with sensory-related health conditions that had at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting…
Data
Resource Type: Template
Audience: Researchers, Clinicians, Hospitals and Health Systems, Industry, Training Institutions

OCHIN-ADVANCE PEP Engagement Guide and Request Form

OCHIN-ADVANCE Clinical Research Network (CRN) developed a request form for researchers to engage with their Patient Engagement Panel (PEP). This can be used as a template by stakeholders when creating utilization request forms to engage…
Resource Type: Guide, Standard Operating Procedure
Audience: Researchers, Clinicians, Hospitals and Health Systems, Industry, Payers

Master Code Set

The master code set provides a centralized, standardized reference of clinical codes across various disease areas along with their corresponding descriptions and classifications. It is designed to support consistent cohort definition, analysis, and reporting by ensuring uniform use of codes across…
Data
Resource Type: Evaluation, Checklist
Audience: Researchers, Clinicians, Hospitals and Health Systems

Research Readiness Snapshot

The Research Readiness Snapshot is a brief self-assessment and planning tool that helps PCORnet partner sites document their current capacity to participate in PCORnet research and identify strengths, gaps, and priorities for growth. It guides sites to review their latest…
Research
Resource Type: Guide, Policy
Audience: Researchers, Training Institutions

OCHIN-ADVANCE Patient Engagement Panel Handbook

The OCHIN-ADVANCE Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices. This can be used to inform development of a governance framework for stakeholder participation…
Resource Type: Survey, Template
Audience: Researchers, Clinicians, Hospitals and Health Systems

Research Work Group Information Survey

This REDCap survey is a templated introductory survey to potential members of a research work group. The survey consists of demographic and research interest questions to better understand the expertise and interests of research team…
Resource Type: Template
Audience: Researchers, Clinicians, Hospitals and Health Systems, Industry, Training Institutions

Patient Engagement Panel (PEP) Proposal Review Template Presentation

OCHIN-ADVANCE Clinical Research Network (CRN) developed this template for researchers to use when discussing proposals with a Patient Engagement Panel (PEP). The template provides a structure for introducing the research study proposal, planned engagement, and…
Resource Type: Data Report
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Metabolic and Endocrine Conditions Population Insights

This report describes the results of a data query of the patients with selected metabolic and endocrine conditions that had at least 1 face-to-face ambulatory encounter and a recorded diagnosis code (e.g., ICD-10) at a…
Data
Resource Type: Guide
Audience: Researchers, Clinicians, Hospital and Health System, Industry

OCHIN-ADVANCE Engagement and Recruitment Guide

This document is an introductory guide for those interested in working with the OCHIN-ADVANCE Clinical Research Network (CRN). It describes engagement and recruitment activities and gives points of contact within the network. This can be…
Resource Type: Guide, Manual, Checklist
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems

Patient Advisory Council (PAC) Handbook

This handbook describes the policies, procedures, benefits, and practices of the Greater Plains Collaborative (GPC) Patient Advisory Council (PAC) membership and engagement opportunities. This resource can be used by researchers and other stakeholder groups that…
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

PCORnet® CRN Population Insights

This report describes the results of a data query of the patient population with at least 1 face-to-face encounter and a recorded diagnosis code (e.g., ICD-10) at a health care setting across PCORnet between January…
Data
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Women’s Health Population Insights

This report describes the results of a network data query of the patient population of women receiving health care services at clinical sites across PCORnet between January 1, 2019 – December 31, 2023. The query…
Data
Resource Type: Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Research Review and Prioritization Group (RRPG) Researcher Template Deck

This RRPG Researcher Template Deck can help investigators prepare presentations for a research review. The template outlines required study information, including grant status and site-specific requests. The completed slides can be provided prior to a…
Research
Resource Type: Template, Standard Operating Procedure
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Interim Progress Report (IPR) Project Management Status Tracker

This Interim Progress Report (IPR) Project Management Status Tracker can help study teams divide IPRs into sections for better task distribution. It refers to previously submitted IPRs and is structured so instructions for each section…
Research
Resource Type: Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Investigator Collaboration Request Form

Researchers interested in collaborating with clinical research network (CRN) sites can use an Investigator Collaboration Request Form. The Collaboration Request Form collects current study status, inclusion/exclusion criteria, a site-specific scope of work, benefits for sites,…
Research
Resource Type: Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Patient and Community Engagement Consultation Form

This Patient and Community Engagement Consultation form can be used to document requests from collaborators to use a clinical research network's patient and community engagement services. Requestors will complete the form to provide details about…
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Gene Therapy Data Report

This query of PCORnet data resources describes the patient population who have undergone gene therapy between January 1, 2016, and June 30, 2024, with distinct cohorts created for gene-therapy-eligible cancer patients and gene-therapy-eligible noncancer patients.…
Data
Resource Type: Guide, Plan
Audience: Researchers, Clinicians, Hospitals and Health Systems

Common Data Model (CDM) Data Quality Validation

This document outlines the data quality validation processing for populating the CDM data model and defines measures that each domain follows during validation processing. Data quality validation covers several aspects including data content validation, data…
Data
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Mental and Behavioral Health Data Report

This report characterizes the patients with recorded diagnosis codes for mental and behavioral health (MBH) conditions that received care at health care settings across institutions participating in PCORnet. The tables in this data report present…
Data
Resource Type: Guide, Checklist
Audience: Researchers

OCHIN-ADVANCE Engagement Core Values, Functions, and Metrics

OCHIN-ADVANCE outlined its priorities and metrics for engagement across patient and caregiver groups in this snapshot. This resource can be used by researchers and other stakeholder groups seeking to improve their level of engagement with…
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Characteristics of the Pediatric Population Across Clinical Research Networks Participating in PCORnet®

This query of PCORnet data resources describes the sociodemographic and clinical characteristics of the population of pediatric patients ages birth to 20 years old with at least one face-to-face health care encounter at a PCORnet…
Data
Resource Type: Presentation/Webinar, Communications and Outreach
Audience: Researchers, Clinicians, Hospitals and Health Systems, Training Institutions

Building Patient Partnerships and Engagement for Large, Data-focused Research Networks and Projects

This presentation from OCHIN-ADVANCE Clinical Research Network (CRN) discusses different engagement strategies for networks, and reviews their patient engagement panel program. Other researchers can adapt the strategies and programs to use within their own networks.…
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Maternal Morbidity and Mortality (MMM) Data Report

This query of PCORnet® data resources describes the sociodemographic and clinical characteristics of a population of patients with a pregnancy-related event that had a healthcare encounter at a partner site between October 1, 2016 –…
Data
Resource Type: Guide, Template
Audience: Researchers, Clinicians, Hospitals and Health Systems

Patient Partner Recruitment & Selection Toolkit

This toolkit includes resources for recruiting and selecting a network patient partner, including a Patient Partner Position Description & Application Instructions and an Interview Guide & Evaluation. The toolkit may be adapted to local context…
Resource Type: Template, Guide, Governance
Audience: Researchers, Clinicians, Hospitals and Health Systems

PCORnet Focused Data Elements Addition Proposal for Centralized Networks

This document provides a template to request sites to share PCORnet data elements. The guide includes details such as the impact of adding the data element for use in research projects, as well as the…
Research
Resource Type: Template, Guide, Governance
Audience: Researchers, Clinicians, Hospitals and Health Systems

Local Studies Standard Operating Procedure

The Local Studies Standard Operating Procedure (SOP) can be used for the documentation of the process involved in the intake and management of studies entering through a Clinical Research Network (CRN) Front Door. From the…
Research
Resource Type: Template
Audience: Researchers, Clinicians, Hospitals and Health Systems

INSIGHT Data Visualization Templates

The INSIGHT Data Visualization Template provides templates of data visualizations that capture the demographic breakdown of a CRN’s patient cohort. A list of data elements available to request is also available. These slides can be…
Data
Resource Type: Data Report, Database
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

Characterizing Telehealth Visits Across Clinical Research Networks Participating in PCORnet®, The National Patient-Centered Clinical Research Network

This query of PCORnet® data resources explores the use of telehealth services among patients at partner sites. The query results aim to showcase how the PCORnet infrastructure can identify disparities in telehealth delivery, understand trends…
Data
Resource Type: Template
Audience: Researchers

Clinical Research Collaboration Agreement

Use this PCORnet-approved agreement to speed the contracting process for PCORI-funded studies. This pre-negotiated template agreement can serve as a starting point for prime and site investigator negotiations. The result is time-savings in the contracting…
Research
Resource Type: Database, Guide, Template
Audience: Researchers, Clinicians, Industry, Hospitals and Health Systems, Payers

GPC Tumor Table Transformation and Linkage

The PCORnet tumor table contains data from hospital tumor registries that are formatted according to standards developed by the North American Association of Certified Cancer Registrars (NAACCR). All hospitals that are accredited by the American College…
Data