Previous PCORnet® Network Partners

PCORnet® Network Partners Over the Years

The Patient-Centered Outcomes Research Institute (PCORI) has supported a phased approach for the development of PCORnet® as a national resource for patient-centered clinical research. The initial phase focused on infrastructure planning and the second phase entailed infrastructure implementation and capacity building. In the current third phase, PCORnet® Network Partners are optimizing their capacity to serve as a national resource for conducting rapid, efficient, patient-centered comparative clinical effectiveness research that improves healthcare delivery and health outcomes.

Below is a list of networks and organizations that formerly participated as network members of PCORnet or as part of the Coordinating Center for PCORnet in Phase 1 and/or Phase 2. These Legacy PCORnet® Network Partners significantly contributed to building the PCORnet infrastructure.

Health Plan Research Networks

Carelon Research (formerly HealthCore-Anthem Research Network HCARN)

Practice Research Network (PRACnet) (formerly Humana – Comprehensive Health Insights CHI; a subsidiary of Humana Pharmacy Solutions)

Patient-Powered Research Networks

ALD Connect
ALD Connect, Inc.

American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network)
University of South Florida

ARthritis patient Partnership with comparative Effectiveness Researchers (AR-PoWER PPRN)
Global Health Living Foundation

Community-Engaged Network for All (CENA)
Genetic Alliance, Inc.

Community and Patient-Partnered Research Network
University of California Los Angeles

COPD Patient Powered Research Network
COPD Foundation

DuchenneConnect Patient-Report Registry Infrastructure Project
Parent Project Muscular Dystrophy

Health eHeart Alliance
University of California, San Francisco

IBD Partners (formerly CCFA Partners)
Crohn’s & Foundation

ImproveCareNow: A Learning Health System for Children with Crohn’s Disease and Ulcerative Colitis
Cincinnati Children’s Hospital Medical Center

Interactive Autism Network
Kennedy Krieger Institute