Previous PCORnet® Network Partners
PCORnet® Network Partners Over the Years
The Patient-Centered Outcomes Research Institute (PCORI) has supported a phased approach for the development of PCORnet® as a national resource for patient-centered clinical research. The initial phase focused on infrastructure planning and the second phase entailed infrastructure implementation and capacity building. In the current third phase, PCORnet® Network Partners are optimizing their capacity to serve as a national resource for conducting rapid, efficient, patient-centered comparative clinical effectiveness research that improves healthcare delivery and health outcomes.
Below is a list of networks and organizations that formerly participated as network members of PCORnet or as part of the Coordinating Center for PCORnet in Phase 1 and/or Phase 2. These Legacy PCORnet® Network Partners significantly contributed to building the PCORnet infrastructure.
Clinical Research Networks
Accessible Research Commons for Health (ARCH) (formerly SCILHS)
Harvard University
Chicago Area Patient Centered Outcomes Research Network (CAPriCORN)
The Chicago Community Trust
Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network
Kaiser Foundation Research Institute
Patient-oriented SCAlable National Network for Effectiveness Research (pSCANNER)
University of California, San Diego
The Patient-Centered Network of Learning Health Systems (LHSNet)
Mayo Clinic
Health Plan Research Networks
Carelon Research (formerly HealthCore-Anthem Research Network HCARN)
Practice Research Network (PRACnet) (formerly Humana – Comprehensive Health Insights CHI; a subsidiary of Humana Pharmacy Solutions)
Patient-Powered Research Networks
ALD Connect
ALD Connect, Inc.
American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network)
University of South Florida
ARthritis patient Partnership with comparative Effectiveness Researchers (AR-PoWER PPRN)
Global Health Living Foundation
Community-Engaged Network for All (CENA)
Genetic Alliance, Inc.
Community and Patient-Partnered Research Network
University of California Los Angeles
COPD Patient Powered Research Network
COPD Foundation
DuchenneConnect Patient-Report Registry Infrastructure Project
Parent Project Muscular Dystrophy
Health eHeart Alliance
University of California, San Francisco
IBD Partners (formerly CCFA Partners)
Crohn’s & Foundation
ImproveCareNow: A Learning Health System for Children with Crohn’s Disease and Ulcerative Colitis
Cincinnati Children’s Hospital Medical Center
Interactive Autism Network
Kennedy Krieger Institute
Mood Patient-Powered Research Network
Massachusetts General Hospital
Multiple Sclerosis Patient-Powered Research Network
Accelerated Cure Project for Multiple Sclerosis
National Alzheimer's and Dementia Patient and Caregiver-Powered Research Network
Mayo Clinic
NephCure Kidney International
Arbor Research Collaborative for Health
Patients, Advocates and Rheumatology Teams Network for Research and Service (PARTNERS) Consortium
Duke University
Phelan-McDermid Syndrome Data Network
Phelan-McDermid Syndrome Foundation
PI Patient Research Connection: PI-CONNECT
Immune Deficiency Foundation
Population Research in Identity and Disparities for Equality Patient-Powered Research Network (PRIDEnet)
University of California San Francisco
Rare Epilepsy Network (REN)
Epilepsy Foundation
Sleep Apnea Patient Centered Outcomes Network (SAPCON)
American Sleep Apnea Association
Vasculitis Patient Powered Research Network
University of Pennsylvania