PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). PCORnet will transform clinical research by engaging patients, care providers and health systems in collaborative partnerships that leverage health data to advance medical knowledge and improve health care. PCORnet will bring together health research and healthcare delivery, which have been largely separate endeavors. By doing so, this national health data network will allow us to explore the questions about conditions, care and outcomes that matter most to patients and their families.
PCORnet represents a unique opportunity to make a real difference in the lives of patients and their families. Until now, we have been unable to answer many most important questions affecting health and healthcare. But by combining the knowledge and insights of patients, caregivers, and researchers in a revolutionary network with carefully controlled access to rich sources of health data, we will be able to respond to patients’ priorities and speed the creation of new knowledge to guide treatment on a national scale.
PCORnet integrates health data for studies and catalyzes research partnerships among two types of networks: Clinical Data Research Networks (CDRNs), which are based in healthcare systems such as hospitals and health centers, and Patient-Powered Research Networks (PPRNs), which are run by groups of patients and their partners who are focused on one or more specific conditions or communities, and who are interested in sharing health information and participating in research. Their efforts are supported by a Coordinating Center.
PCORI Board Approves $142.5 Million to Fund Expansion Phase of PCORnet, the National Patient-Centered Clinical Research Network
The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved nearly $142.5 million to support the ongoing development and expansion of an ambitious new resource for health research known as PCORnet, the National Patient-Centered Clinical Research Network.
The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved a three-year, $14 million clinical trial designed to determine the best dose of aspirin to use to prevent heart attacks and strokes in people with heart disease.
The study, called ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-term Effectiveness), will compare the benefits and harms of a low- and regular-strength daily dose of aspirin in patients diagnosed with heart disease.
In his first blog post for US News and World Report, Seth Ginsberg, PI for the AR-PoWER PPRN, describes PCORnet as an emergent opportunity for patients to work more closely than ever before with researchers, leading to a much better understand of health conditions and outcomes.