PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). It is designed to make it faster, easier, and less costly to conduct clinical research than is now possible by harnessing the power of large amounts of health data and patient partnerships. In the process, it is transforming the culture of clinical research from one directed by researchers to one driven by the needs of patients and those who care for them.
The 2018 AcademyHealth Annual Research Meeting (ARM) is a great opportunity to showcase PCORnet research. ARM, which will take place Jun. 24-26 in Seattle, Washington, is now accepting abstracts for panels on critical and emerging issues in health services research, policy roundtables, research panels, student posters, and abstract sessions. The abstract submission deadline is January … Continue reading Call for Abstracts: 2018 AcademyHealth Annual Research Meeting
Authors: Elisha Malanga is the Chief Research Officer of the COPD Foundation, a patient-led advocacy organization dedicated to improving the lives of those affected by COPD and the prime organization for the COPD Patient-Powered Research Network (COPD PPRN). She has worked with the COPD Foundation since 2008 and has led numerous efforts including the creation of … Continue reading Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture
As researchers dive into the details of obesity science, they are learning that, like most mechanisms of the human body, obesity is a result of myriad factors at play. In simpler terms, if the relationship between excess weight and the human body were to have a Facebook status, it would almost certainly be: “it’s complicated.” … Continue reading Unlocking Patient and Caregiver Partnerships in Obesity Research: ObesityWeek 2017