The Patient-Centered Outcomes Research Institute (PCORI) is supporting the development of PCORnet, the National Patient-Centered Clinical Research Network, to create a large, highly representative, national network for conducting clinical outcomes research.
PCORnet will transform clinical research by engaging patients, care providers, and health systems in collaborative partnerships to improve healthcare and advance medical knowledge. By bringing research and patient care together, this innovative health data network will be able to explore the questions that matter most to patients and their families. Read more ….
- April 20, 2015Read more
Released: April 20, 2015, Genetic Alliance
Genetic Alliance has been awarded the contract to lead the PCORnet Coordinating Center effort to leverage the value of the Patient Powered Research Networks (PPRNs). ...
- March 19, 2015Read more
Posted March 16, 2015, Applied Clinical Trials
Building on the experience gained from FDA meetings soliciting patient perspectives, sponsors are now querying patient groups to help define the key goals of ...
- March 12, 2015Read more
Published January 2015
Summary of the results of a survey of attendees of the April 2014 Institute of Medicine workshop, sponsored by the Patient-Centered Outcomes Research Institute (PCORI): Heath System Leaders ...
- December 5, 2014Read more
December 4, 2014
In a move to speed the initiation of clinical research in multi-site clinical studies by ensuring use of single institutional review boards (IRBs), the National Institutes of Health ...
- November 26, 2014
A three-part educational video series exploring patient involvement in clinical research is available from PHT Corporation. The videos were recorded live at the PHT PRO & eCOA Congress.
- November 20, 2014Read more
November 19, 2014
The Department of Health and Human Services and the National Institutes of Health (NIH) released for public comment two proposals to increase the transparency of clinical trials via ...
- November 19, 2014
November 17, 2014: NYTimes.com
Dr. Robert Califf, a Duke cardiologist and the co-principal investigator for PCORnet, led a six-year study of a new cholesterol-lowering drug in the IMPROVE-IT trial.
- November 19, 2014Read more
Institute of Medicine, November 13, 2014: Capturing Social and Behavioral Domains and Measures in Electronic Health Records, Phase 2
In this recent Institute ...
- November 12, 2014Read more
The National Diabetes Education Program (NDEP) has recently published Guiding Principles for the Care of People With or at Risk for Diabetes …highlighting a set of 10 guiding ...
- November 10, 2014Read more
Getting a firm handle on what’s best for whom is a pressing quest of national healthcare reform — and Temple is working at its leading edge. Anuradha Paranjape, MD, MPH, ...
- November 20, 2014