Engagement

Engaged communities drive better, faster research.

What do we mean by “communities”?

Patients and caregivers
Clinicians/Clinic Staff
Insurers
Policymakers
Others

Engagement in PCORnet-enabled research is a two-way street.

Patients and caregivers have a seat at the table of every PCORnet® Study, engaging as coequal collaborators with health professionals.

From the Researcher Perspective

Patients offer important context, directly informing understanding of a condition, its effects, and the burden of illness
Patients can identify processes or procedures that research participants may find too burdensome, allowing researchers to amend and potentially boost study enrollment
Patients ensure endpoints are meaningful, helping researchers deliver results that will improve the patient experience
Patients can mobilize patient groups for participation in clinical trials
Patients are essential partners in helping to disseminate results in a way that is clear to diverse communities

From the Patient Perspective

Partnering in research empowers patients and caregivers to set the research agenda, advocating for prioritization of questions that matter to their community
Patient partners can influence meaningful changes to study designs, giving these projects the best chance of success
Patient partners report positive experiences in participating in and contributing to research that leads to improved clinical answers
Patients drive adoption of actionable findings and meaningful changes in clinical care

Meet the PCORnet Patient Partners

Input from PCORnet patient partners makes research better—its implementation has effectively accelerated study enrollment rates, improved protocol design, inspired more relevant research aims, and strengthened dissemination of results. PCORnet patient partners serve on the PCORnet® Steering Committee.