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In the News: Changing the Face of Sleep Apnea

Sleep Review; posted May 14, 2014 MyApnea.org, an ambitious new online network backed by a million dollar grant, will have 50,000 members within the next 18 months. Powered by patients, this site has the potential to change how patients, professionals, and the public understand obstructive sleep apnea. MyApnea.org [or Sleep Apnea Patient Centered Outcomes Network … Continue reading In the News: Changing the Face of Sleep Apnea

Grand Rounds: August 1 – Brendan Delaney, Vasa Curcin, & Derek Corrigan

A Shared Forum of the NIH Health Care Systems Research Collaboratory and PCORnet Speakers: Prof. Brendan Delaney, MD, FRCP, FRCGP Wolfson Chair of General Practice King’s College London NIHR Biomedical Research Centre at Guy’s and St Thomas’ NHS Foundation Trust and King’s College London Department of Primary Care and Public Health Sciences Vasa Curcin, PhD … Continue reading Grand Rounds: August 1 – Brendan Delaney, Vasa Curcin, & Derek Corrigan

Resource Center Office Hours: July 1 – Lucila Ohno-Machado, MD, PhD & Kristin Newby, MD, MHS

Web Conference Meeting Info: Tuesday, July 1, 2014 Time: 3:00 – 4:00 pm, Eastern Standard Time The following Partner and Task Force Leader will answer questions related to PCORnet activities and to discuss opportunities for collaboration: Lucila Ohno-Machado, MD, PhD Professor of Medicine Founding Chief, Division of Biomedical Informatics Associate Dean for Informatics and Technology … Continue reading Resource Center Office Hours: July 1 – Lucila Ohno-Machado, MD, PhD & Kristin Newby, MD, MHS

In the News: PCORnet: turning a dream into reality

Editorial: Journal of American Medical Informatics Association; Published Online First 12 May 2014 Francis S Collins, Kathy L Hudson, Josephine P Briggs, Michael S Lauer Many modern physician specialists like to think of their work as grounded in strong science. Yet 5 years ago, a group of cardiologists published their findings on the science underlying over … Continue reading In the News: PCORnet: turning a dream into reality

In the News: PCORI in the Literature (JAMIA Special Issue)

JAMIA Issue Features PCORnet: May 2014, Volume 21, Issue 3 A special collection of papers in the Journal of the American Medical Informatics Association explores PCORnet, the National Patient-Centered Clinical Research Network initiative. This special set of articles includes an editorial by National Institutes of Health Director Francis Collins, MD, PhD, an overview of PCORnet’s … Continue reading In the News: PCORI in the Literature (JAMIA Special Issue)

In the News: Big Data Treasure Trove From Routine Medical Checkups

Wall Street Journal: By AMY DOCKSER MARCUS. Posted: May 12, 2014 7:13 p.m. ET The Rise of Electronic Health Records Helps Doctors Make a Better Diagnosis Researchers are analyzing pools of patient information collected from routine checkups to help doctors better diagnose their patients. This type of data is easier to mine thanks to the … Continue reading In the News: Big Data Treasure Trove From Routine Medical Checkups

In the News: Data-Driven Improvement in Care and Patient Outcomes

North Carolina Medical Journal, May/June 2014; Invited Commentary With ongoing advances in information technology, health care is now awash in medical data. Used wisely, this data can promote quality of care, lower costs, and enhance patient outcomes. This issue of the NCMJ provides real-world examples of how health care providers, insurers, industry, and others are … Continue reading In the News: Data-Driven Improvement in Care and Patient Outcomes

Funding Opportunity: PCORnet Infrastructure Sustainment RFI

PCORI is seeking information on the potential scope and associated costs of ensuring continuity and sustainability of projects supported by PCORnet, the National Patient-Centered Clinical Research Network. While this RFI is open to all, PCORI is particularly interested in responses from individuals who have knowledge of, and experience working with, existing large regional or national … Continue reading Funding Opportunity: PCORnet Infrastructure Sustainment RFI

LAST EVENT in the Standards and Tools Webinar Series: Managing the Mass of Measures: Real People’s Real Data Made Useful – June 24

Hosted by Genetic Alliance This webinar series examines the plethora of tools and resources available to make use of health-related data. Throughout the series we will examine standards, common data elements, validated instruments, algorithms, queries and methods for small and large data. Opportunities and challenges will be identified throughout the series. Topics and dates are … Continue reading LAST EVENT in the Standards and Tools Webinar Series: Managing the Mass of Measures: Real People’s Real Data Made Useful – June 24

Resource Center Office Hours: June 26 – Jeff Brown, PhD & Lesley Curtis, PhD

Web Conference Meeting Info: Monday, June 26, 2014 Time: 9:00-10:00 am, Eastern Standard Time The following Task Force leaders will answer questions related to PCORnet activities and to discuss opportunities for collaboration: Lesley Curtis, PhD – DSSNI – Data Standards Security Network Infrastructure Task Force Associate Professor, Duke University Jeff Brown, PhD – DSSNI – … Continue reading Resource Center Office Hours: June 26 – Jeff Brown, PhD & Lesley Curtis, PhD