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Researchers Say Their Path To Better Health Starts With Patients’ Input

In an article in Kaiser Health News, Guy Gugliotta discusses how PCORI as an independent organization charged with bringing health care professionals and patients together in cooperative research ventures to find the best treatments for ailments ranging from diabetes to depression, and last month opened the second phase of a program (PCORnet) to create research networks covering specific diseases and involving millions of patients across the country.
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Spotlight on a Patient-Powered Research Network

In its September newsletter, the patient advocacy group Facing Our Risk of Cancer Empowered (FORCE) highlights its participation in ABOUT (American BRCA* Outcomes and Utilization of Testing). ABOUT is one of the Patient-Powered Research Networks (PPRNs) that are an important part of PCORnet, the National Patient-Centered Clinical Research Network, which PCORI is developing.
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NIH Health Care Systems Research Collaboratory offers new perspectives on clinical research

September 15, 2015 – A special series of articles addressing the ethical and regulatory challenges to pragmatic clinical trials appears this week on the website of the journal Clinical Trials. The 12 articles were sponsored by the NIH Health Care Systems Research Collaboratory with additional support from the Patient-Centered Outcomes Research Institute, and include authors … Continue reading NIH Health Care Systems Research Collaboratory offers new perspectives on clinical research

PCORI Awards $9 Million for Research on Weight Loss Surgery and Childhood Obesity

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved $9 million to fund two research studies focused on the treatment and prevention of obesity in children and adults. The research teams will use the partnerships and secure data resources of PCORnet, the National Patient-Centered Research Network, to fill key evidence gaps about this important health issue.
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Leveraging PCORnet and Health Data to Make Gains against Obesity

Date: August 18, 2015
Authors: Rachael Fleurence, PhD, Program Director, CER Methods and Infrastructure, PCORI and Joe Selby, MD, MPH, Executive Director, PCORI

Obesity is at epidemic levels in the United States. About 30 percent of American adults are considered obese, with 5 percent severely obese, and among adolescents (ages 12-19), 20 percent are obese.
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PCORI Board Approves $142.5 Million to Fund Expansion Phase of PCORnet, the National Patient-Centered Clinical Research Network

The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved nearly $142.5 million to support the ongoing development and expansion of an ambitious new resource for health research known as PCORnet, the National Patient-Centered Clinical Research Network.
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PCORnet: Progress, Challenges, and Opportunities Ahead

Date: July 21, 2015
Authors: Rachael Fleurence, PhD, Program Director, CER Methods and Infrastructure, PCORI and Joe Selby, MD, MPH, Executive Director, PCORI

When PCORI first proposed developing a national clinical research collaborative and community that would harness the power of partnerships and health data to improve patient outcomes, we knew we’d set out on an unprecedented and exciting path.
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ADAPTABLE Study protocol posted for stakeholder review

Review and provide comments on the ADAPTABLE study research protocol.  ADAPTABLE is  the first demonstration project to be conducted through PCORnet.  ADAPTABLE is based on a model of sharing knowledge and provides a unique opportunity to engage and collaborate with physicians, patients, patient representatives, investigators, research study team members, and support staff.