Stories and Announcements
May 20, 2020
PCORnet® Gives Reason To Celebrate Connection And Community This Clinical Trials Day
As COVID-19 pandemic continues to spread, keeping many across the world at home and disconnected from their communities, PCORnet®, the National Patient-Centered Clinical Research Network, is rallying to build coalitions and deliver hope. May 20 is Clinical Trials Day, a time to remember that clinical research has always been about bringing together people to build a healthier world—and in the era of COVID-19, patient engagement in research is more important than ever.
May 15, 2020
PCORnet® COVID-19 Common Data Model Launched, Enabling Rapid Capture Of Insights On Patients Infected With The Novel Coronavirus
COVID-19 has upended life globally, and the need for patient-centered insights and answers has never been more pronounced. Leadership of PCORnet®, the National Patient-Centered Clinical Research Network, is responding with bold action by creating a COVID-19-specific Common Data Model (CDM). The new CDM will allow researchers to use information gathered from patients across PCORnet’s vast network to better define and understand who is getting infected with SARS-CoV-2 and how the virus affects them.
April 13, 2020
PCORnet®-Enabled HERO Registry Launched, Unites Frontline Healthcare Workers To Fight COVID-19
The Healthcare Worker Exposure Response & Outcomes (HERO) Registry launched today, marking the first major milestone in a rapid-response effort to answer important questions about protecting healthcare workers from COVID-19. The HERO program is funded by the Patient-Centered Outcomes Research Institute (PCORI) coordinated by the Duke Clinical Research Institute (DCRI) and enabled by PCORnet®, the National Patient-Centered Clinical Research Network.
April 1, 2020
PCORnet® Tapped to Deliver Fast Answers in New Research Evaluating the Health and Outcomes of Healthcare Workers on the Front Lines of COVID-19
As the coronavirus disease (COVID-19) pandemic intensifies across the United States, the need for fast, reliable answers to support national health and safety has never been more important. This is exactly the type of environment PCORnet®, the National Patient-Centered Clinical Research Network, was developed to navigate. The Patient-Centered Outcomes Research Institute (PCORI) today announced up to $50 million in funding for the Healthcare Worker Exposure Response & Outcomes (HERO) research program, which will use PCORnet resources to explore important questions about preventing healthcare workers from contracting COVID-19.
March 23, 2020
Patient Reps Power PCORnet’s Steering Committee Part 2: A Q&A with Neely Williams
Even on a tough day, it’s hard not to smile while chatting with patient representative Neely Williams. Maybe it’s the passion she brings to patient-centered research as a community partner consultant at the National Institutes of Health and the patient co-principal investigator for the PCORnet Bariatric Study. Maybe it’s her knack for talking about research in a frank, down-to-earth manner that makes it accessible and unintimidating to lay communities. At any rate, Neely is undeniably a strong and positive force in the PCORnet community, and now that she’s joined the PCORnet Steering Committee as one of three patient representatives, her light shines even brighter.
March 18, 2020
JAMA Cardiology Paper Details Design Elements Of ADAPTABLE, First Pragmatic Trial To Use PCORnet®
A recent JAMA Cardiology paper describes several design elements that make ADAPTABLE, a demonstration study of PCORnet®, the National Patient-Centered Clinical Research Network, a novel pragmatic clinical trial. The manuscript’s authors detailed these trial elements with an aim to inspire efficiency and patient-centricity in future trials.
March 4, 2020
Real-World Evidence Empowers Personalized Decisions About Weight-Loss Surgery
With its latest findings in JAMA Surgery on how many adults see their Type 2 diabetes go away and come back following weight-loss surgery, the PCORnet Bariatric Study now provides patients and their doctors with a more complete picture about the comparative benefits and risks of the two most commonly used surgical procedures. This real-world evidence enables patients in consultation with their providers to make more personalized decisions about which option would be best for them.
February 18, 2020
PCORnet® Study ADAPTABLE Inspires New Tools To Rapidly Compare Data From EHRs And Patient-Reported Data
The ADAPTABLE study broke ground as the first major randomized comparative effectiveness trial conducted using the infrastructure of PCORnet®, the National Patient-Centered Clinical Research Network. Now, a team of researchers building on the learnings of ADAPTABLE is raising the research bar with the development of a new menu-driven query (MDQ) that enables rapid comparison between electronic health record (EHR) data and information reported directly by patients.
January 22, 2020
Results from PCORnet® Bariatric Study Published in JAMA Surgery
There were no differences in all-cause mortality between patients who had sleeve gastrectomy or Roux-en-Y gastric bypass (RYGB), but operations, hospitalizations, and other longer-term problems were more often associated with RYGB than sleeve gastrectomy, according to a new JAMA Surgery paper reporting results from the PCORnet® Bariatric Study.
December 13, 2019
PCORnet Leader Rainu Kaushal Elected To Prestigious National Academy Of Medicine
Dr. Rainu Kaushal wears many hats. She serves as the principal investigator for INSIGHT-NYC, a Partner Network of PCORnet®, the National Patient-Centered Clinical Research Network; chair of the Department of Healthcare Policy and Research at Weill Cornell Medicine; physician-in-chief of healthcare policy and research at New York-Presbyterian/Weill Cornell Medical Center, and a member of the PCORnet Steering Committee. Now, in recognition of her outstanding achievements and exceptional service in medical sciences, healthcare and public health, Dr. Kaushal is donning a new hat, that of an elected member of the National Academy of Medicine (NAM). NAM members are selected by their peers, and membership is one of the highest honors in health and medicine.
December 10, 2019
Patient Reps Power PCORnet’s Steering Committee: A Q&A with Henry Cruz
If you are looking for a reason to get excited about the promise of PCORnet®, the National Patient-Centered Clinical Research Network, look no further than Henry Cruz. He’ll give you 10, and you’ll leave your encounter with him energized and in awe of a guy who grew up the youngest of 12 kids in a low-income community in Brooklyn and now lives in Harlem where he works to bring better community and patient engagement to clinical research.
October 23, 2019
Newly Funded Statin Pragmatic Trial To Be Fueled By PCORnet® Resources And Informed By The Network’s Past Success
PCORnet®, the National Patient-Centered Clinical Research Network, will serve as a key resource for a new pragmatic trial studying effectiveness of statins in older adults without known cardiovascular disease. The National Institute of Aging and the National Heart, Lung, & Blood Institute will support the trial, recently announcing funding of $90 million to bring it to life.