Stories and Announcements

2020

February 18, 2020

PCORnet® Study ADAPTABLE Inspires New Tools To Rapidly Compare Data From EHRs And Patient-Reported Data

The ADAPTABLE study broke ground as the first major randomized comparative effectiveness trial conducted using the infrastructure of PCORnet®, the National Patient-Centered Clinical Research Network. Now, a team of researchers building on the learnings of ADAPTABLE is raising the research bar with the development of a new menu-driven query (MDQ) that enables rapid comparison between electronic health record (EHR) data and information reported directly by patients.

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January 28, 2020

PCRF Central Office Transition

The People Centered Research Foundation (PCRF), in its role as the Central Office for PCORnet®, has supported PCORnet’s ongoing progress and maturation. The PCRF Board of Directors has issued a statement regarding PCRF’s role in PCORnet and transition plans.

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January 22, 2020

Results from PCORnet® Bariatric Study Published in JAMA Surgery

There were no differences in all-cause mortality between patients who had sleeve gastrectomy or Roux-en-Y gastric bypass (RYGB), but operations, hospitalizations, and other longer-term problems were more often associated with RYGB than sleeve gastrectomy, according to a new JAMA Surgery paper reporting results from the PCORnet® Bariatric Study.

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2019

December 13, 2019

PCORnet Leader Rainu Kaushal Elected To Prestigious National Academy Of Medicine

Dr. Rainu Kaushal wears many hats. She serves as the principal investigator for INSIGHT-NYC, a Partner Network of PCORnet®, the National Patient-Centered Clinical Research Network; chair of the Department of Healthcare Policy and Research at Weill Cornell Medicine; physician-in-chief of healthcare policy and research at New York-Presbyterian/Weill Cornell Medical Center, and a member of the PCORnet Steering Committee. Now, in recognition of her outstanding achievements and exceptional service in medical sciences, healthcare and public health, Dr. Kaushal is donning a new hat, that of an elected member of the National Academy of Medicine (NAM). NAM members are selected by their peers, and membership is one of the highest honors in health and medicine.

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December 10, 2019

Patient Reps Power PCORnet’s Steering Committee: A Q&A with Henry Cruz

If you are looking for a reason to get excited about the promise of PCORnet®, the National Patient-Centered Clinical Research Network, look no further than Henry Cruz. He’ll give you 10, and you’ll leave your encounter with him energized and in awe of a guy who grew up the youngest of 12 kids in a low-income community in Brooklyn and now lives in Harlem where he works to bring better community and patient engagement to clinical research.

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October 31, 2019

PCRF Seeks Nominations For Board Of Directors

The People-Centered Research Foundation (PCRF) seeks nominations from current PCORnet® Network members for its Board of Directors. PCRF is the Central Office for PCORnet, the National Patient-Centered Clinical Research Network. PCRF was formed by PCORnet Network partners as an independent, non-profit organization to sustain PCORnet.

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October 23, 2019

Newly Funded Statin Pragmatic Trial To Be Fueled By PCORnet® Resources And Informed By The Network’s Past Success

PCORnet®, the National Patient-Centered Clinical Research Network, will serve as a key resource for a new pragmatic trial studying effectiveness of statins in older adults without known cardiovascular disease. The National Institute of Aging and the National Heart, Lung, & Blood Institute will support the trial, recently announcing funding of $90 million to bring it to life.

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September 10, 2019

PCORnet Coordinating Center Engagement Function Request For Proposals

PCRF is seeking proposals from applicants interested in supporting and optimizing the implementation and operationalization of a PCORnet Coordinating Center for Person-Centered Engagement. This Coordinating Center will not define and design the engagement process but will draw upon current engagement practices of…

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January 3, 2019

Request for Proposal and Quote: Development of Privacy-Preserving Record Linkage

To improve our nation’s capacity to conduct clinical research more efficiently and to answer important questions that patients and clinicians face, the Patient-Centered Outcomes Research Institute (PCORI) funded the creation of the National...

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2018

December 3, 2018

Notice of intent to publish a request for proposals for privacy-preserving record linkage

The People-Centered Research Foundation (PCRF) intends to publish a request for proposals (RFP) from software and technology vendors to provide services and/or solutions for privacy-preserving record linkage across the National Patient-Centered Clinical Research Network (PCORnet). PCRF is an independent non-profit created to…

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2017

October 16, 2017

Michelle Culp Joins People-Centered Research Foundation as Vice President for Research

The People-Centered Research Foundation (PCRF) welcomes Michelle Culp, who has joined the organization as Vice President for Research. Culp comes to PCRF with a wealth of experience and expertise in clinical research operations and clinical trial management. She has served as the Director…

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March 22, 2017

Dr. Robert Califf Announces Establishment of Patient-Centered Research Foundation

From the desk of Robert Califf Dear Partner in Research: I am delighted to share with you that we have established a new, non-profit organization committed to accelerating people-driven research. The new People-Centered Research Foundation (PCRF) has been created to sustain and…

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