Media Kit Resources

Are you a reporter looking for stories to tell about new ways of doing research?

We have stories to share. The National-Patient Centered Clinical Research Network (PCORnet), a PCORI initiative committed to furthering people-centered research and driving meaningful patient outcomes, is a “network of networks” that spans every state in the U.S. PCORnet leaders are available to speak to subjects such as:

  • Engaging and partnering with patients and participants at every step of the research process.
  • Embedding research into everyday, real-world settings.
  • Harmonizing and curating data to find answers more efficiently.
  • Improving chronic disease prevention and treatment.
  • Investigating rare diseases.
  • Learning how to better research underserved populations such as children, people with multiple conditions, the uninsured and other vulnerable groups.
  • And many more…

If you are a reporter or writer who wants to learn more or get in touch with an expert in our network, please contact us.  We’d love to help you.

Media Contacts

Christine Stencel
Associate Director of Media Relations
cstencel@pcori.org
(202) 827-7707
Jennifer Cook
Communications Specialist
jennifer.cook@duke.edu
(919) 668-8382
Follow Us on Twitter: @PCORnetwork  @PCORI

PCORnet Resources

Media FAQs

How Can I Find Relevant PCORnet Networks or Studies?

PCORnet is made up of partner networks—13 Clinical Data Research Networks (CDRNs), based in healthcare systems such as hospitals, integrated delivery systems, and federally qualified health centers, 20 Patient-Powered Research Networks (PPRNs), operated and governed by groups of patients and their partners, and 2 Health Plan Research Networks (HPRNs), actively engaged in partnering to link claims data with Electronic Health Record (EHR) data.  To learn more about specific Networks or Studies:

  • Visit our partner network pages, where we list contact and social media information, areas of focus (including populations and conditions), and other details to connect with networks of interest. CDRNs and PPRNs range in scope and operate at the local, state, regional and national level throughout the U.S.
  • Identify which PPRNs are working on which conditions through this PPRN Conditions List, which catalogs conditions currently represented by PCORnet PPRNs. Please note: PPRNs are focused on one or more specific conditions or communities, while CDRNs are engaged in a wide portfolio of research interests and do not have one specific area of therapeutic focus.
  • Learn about PCORnet’s 14 Demonstration Studies, which test PCORnet’s capabilities while answering key questions designed to help patients and those who care for them make better-informed health and healthcare decisions. These studies also help advise the future of PCORnet by highlighting opportunities for improvement and enhancement.
  • Learn about PCORnet’s 11 Collaborative Research Groups (CRGs), which foster multi-network partnerships focused on developing new research questions that are highly-relevant to specific health topics, such as research methods, health care utilization, health conditions, or patient populations.

If you need help in finding the right network or study to inform your reporting, please contact Christine Stencil (cstencel@pcori.org) or Jenny Cook (jennifer.cook@duke.edu).

How Does PCORnet fit into the larger vision of PCORI?

The Patient-Centered Outcomes Research Institute (PCORI), an independent, nonprofit organization, was created in 2010. PCORI’s mission is to fund comparative clinical effectiveness research (CER) that is centered on the needs of people and provides vital information that allows patients, clinicians and caregivers to make better, more informed healthcare decisions.

As an extention of this mission, PCORI created the National Patient-Centered Clinical Research Network (PCORnet). By harnessing vast amounts of data generated through everyday encounters in the healthcare system — electronic health records, insurance claims data, patient-reported outcomes, and other data sources – PCORnet embeds research into the daily routine of clinical care, allowing the conduct of pragmatic CER studies and the ability to learn from the experiences of all different kinds of patients, in all manner of real world situations.

Where Does PCORnet Data Come from and how is it used?

PCORnet data comes from its partner networks which span every state across the nation, PCORnet currently includes data from more than 100 million patients with diverse conditions who have had a medical encounter in the past five years. Medical encounters can include many different scenarios, such as a visit to a doctor’s office or an Emergency Room visit. Data often includes electronic health records, claims data, prescribing data, patient-reported data, lab results and other sources.

Networks share a Common Data Model so that each network has the ability to report these data sources consistently.  By harmonizing the data across PCORnet, all networks benefit from having a streamlined, efficient way to use the data produced by these organizations for a wide range of research questions.  Data is currently being used in a wide portfolio of research projects.

How is PCORnet Different from Other Data Initiatives?

PCORnet is complementary to other national and regional efforts that harness large healthcare data sets, but is also unique in three fundamental ways.

  • PCORnet is advancing a philosophy of “patient-centered research” in which researchers partner with the patients and other end-users of study results throughout the research process.
  • PCORnet is modeling a way to embed research data collection into routine clinical practice through its Common Data Model.
  • PCORnet is continuing to build a health data infrastructure that is unrivaled in its sheer size and diversity of information.
Has PCORnet Tested Its Functionality?

Research is well underway through PCORnet’s 14 PCORI-funded Demonstration Studies that simultaneously test the networks’ infrastructure and key functionalities while exploring critical research questions that matter to patients and clinicians. Each study falls into one of four initiatives: Interventional Studies, Obesity Observational Studies, Patient-Powered Research Network (PPRN) Studies, and Health Systems Studies.

Last updated on March 23, 2018