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PCORnet Best Practice Sharing Session – Leveraging Social Media to Raise Awareness and Build Community

June 8, 2017 @ 11:00 am EDT - 12:00 pm EDT

With 81 percent of the U.S. population reporting owning a social networking profile in 2017, social media provides a great opportunity for patients and researchers to connect with each other, build communities, and raise awareness of patient-centered research.

Achieving the most impact from a social media presence requires savvy on which channels to engage and how. Social media specialists from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and PCORnet’s first demonstration study, ADAPTABLE, will explore the opportunities and obstacles for leveraging social media in a network, including best practices and case studies to enhance understanding.

Join us before or after the session to discuss this topic on the PCORnet Commons.  Note: You must have (or register for) an account to add comments in this forum.

Session Objectives:

  • Learn how to use metrics to inform channel strategy and content
  • Learn how collaborations and partnerships can help reach more people
  • Learn about suggested guidelines, best practices, useful tools and tips


Joseph M. Coe, MPA, Patient Advocate, Social Media Manager
Global Health Living Foundation/Arthritis Power (AR-PoWER PPRN)/Creaky Joints

M. Patricia McAdams, MS, Communication Specialist, Duke Clinical Research Institute
Social Media Specialist, ADAPTABLE Study and PCORnet Communications

Session Materials:

View the session Recording below and download the Presentation.


Click here to join WebEx Meeting

  1. You must log in to the URL first.
  2. Click ‘Audio Conference’.
  3. Choose ‘I will call in’, select 1-650-479-3207.
  4. Dial in using the information from the dialog box that appears. Be certain to use the Access Code AND the Attendee ID.
  5. Everyone is muted on entry. If you would like to participate, use the chat box and please select ‘send to everyone’.


If the URL above does not work, go to dukemed.webex.com and enter:
Meeting Number: 734 221 877
Meeting Password: 1234
For Audio ONLY: 1-650-479-3207 / Access code: 735 221 877


June 8, 2017
11:00 am EDT - 12:00 pm EDT