OneFlorida Clinical Data Research Network

Details and Information

Visit the OneFlorida Website

Organization: University of Florida

Contact: [email protected]

Principal Investigator: Elizabeth Shenkman, PhD

Co-Principal Investigator(s): William Hogan, MD, MS

About OneFlorida

Florida is the nation’s third most populous state and one of its most diverse in terms of race/ethnicity, age, health status, and geography, making it an ideal venue for conducting research that reflects the future demographics of America and informing patient care from diverse perspectives. The OneFlorida Clinical Research Consortium was created in 2009 by aligning diverse partners, including patients, clinicians, health systems, researchers, payers of third-party claims, and state agencies in Florida, to provide an enduring infrastructure for interventional and observational studies within all of Florida’s 67 counties. The consortium includes three large university systems and nine unique clinical systems that, in 2014, provided care for approximately 9.7 million (48 percent) of all Floridians through 4,100 physicians, 1,240 clinical practices, and 22 hospitals. It has key centralized infrastructure that makes research efficient, including a central Data Trust with data on 8.2 million Floridians thus far and a consortium-wide cooperative Institutional Review Board. The public is engaged at every level of the consortium, including informing proposals from a patient or community member perspective and serving in key leadership roles, including committees and project workgroups. In addition to the consortium’s incredible diversity, its scientific leadership brings decades of experience working with vulnerable populations, conducting large-scale pragmatic clinical trials and innovating in the areas of novel data linkages and electronic health record verification and analysis.

2017 Project Poster : Implementing a Hash-base Privacy-Preserving Record Linkage Tool in the OneFlorida Clinical Data Research Network

Initial Network Use-Case

  • High Prevalence Cohort Clinical Condition: Hypertension
  • Rare Disorder Clinical Condition: Duchenne muscular dystrophy
  • Populations Covered by Initial Focus: Children 0-12, children 13-18, children 18-21, Adults >65, disabled persons, racial or ethnic minorities, rural, urban, women, LGBT, socioeconomic/underserved, individuals with multiple conditions, individuals with rare diseases, patients with low health literacy/numeracy
Last updated on December 14, 2017