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PCORnet Study Results Show Small Link between Childhood Obesity and Antibiotics

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As researchers dig into the science behind obesity, particularly in young children, we are learning some interesting things. For example, a growing body of evidence shows that our microbiome, a word for the collective trillions of bacteria and other microbes that live in our gut, may be a factor in how our body handles fat. … Continue reading PCORnet Study Results Show Small Link between Childhood Obesity and Antibiotics

Weighing the Options: PCORnet Study Shows Gastric Bypass Surgery Yields Greater Weight Loss than Other Procedures

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PCORnet, the National Patient-Centered Clinical Research Network, is delivering on its mission to answer important questions that help patients make better-informed health care decisions. The Annals of Internal Medicine this week published findings from the PCORnet Bariatric Study.   This study compared the health benefits of three common weight-loss operations: gastric bypass, sleeve gastrectomy, and … Continue reading Weighing the Options: PCORnet Study Shows Gastric Bypass Surgery Yields Greater Weight Loss than Other Procedures

Join in PCORI’s 4th Annual Meeting

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Want to be inspired with insights and new ideas for bringing evidence-based, patient-centered research to life? Look no further than PCORI’s 4th Annual Meeting, which runs from October 31 through November 2 in Washington, D.C. This year’s event, “From Evidence to Impact: Putting What Works into Action,” will spotlight results from dozens of PCORI-funded studies … Continue reading Join in PCORI’s 4th Annual Meeting

The Unsung Role Caregivers Play in People-Driven Research

Valentine’s Day is upon us, but when you are a caregiver for someone, there’s no need for a special day to show your love. For the 43.5 million unpaid caregivers in the United States, unconditional care that goes above and beyond is a constant daily practice. It’s not a stretch to say that these caregivers … Continue reading The Unsung Role Caregivers Play in People-Driven Research

Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Authors: Elisha Malanga is the Chief Research Officer of the COPD Foundation, a patient-led advocacy organization dedicated to improving the lives of those affected by COPD and the prime organization for the COPD Patient-Powered Research Network (COPD PPRN). She has worked with the COPD Foundation since 2008 and has led numerous efforts including the creation of … Continue reading Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Matching Patients to Clinical Trials for People Affected by Hereditary Cancers

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Author: Sue Friedman, DVM, is Executive Director for Facing Our Risk of Cancer Empowered (FORCE) which is a lead organization in PCORnet’s ABOUT Patient Powered Research Network (PPRN).  Friedman is a Co-Principal Investigator for ABOUT. It’s an exciting time for hereditary cancer research as the pace of new personalized medicine treatments and targeted therapies has … Continue reading Matching Patients to Clinical Trials for People Affected by Hereditary Cancers

PARTNERS PPRN Uses Health Literacy Tools to Empower Patients

Authors: Vincent Del Gaizo is the father of a systemic onset juvenile idiopathic arthritis patient diagnosed in 2001 at 15 months of age. For the past 12 years, he has been actively involved in the field of pediatric rheumatology research, directly contributing the patient voice and perspective to research initiatives in these rare diseases. He was … Continue reading PARTNERS PPRN Uses Health Literacy Tools to Empower Patients

The Power of Collaboration: A Glimpse Into PCORnet’s Commitment to Stakeholder Engagement

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PCORnet, the National Patient-Centered Clinical Research Network, an initiative of the Patient-Centered Outcomes Research Institute (PCORI), has put stakeholder engagement, particularly research participants, at the heart of its infrastructure. Operating as an extension of PCORI’s mission to bring patient voices to the forefront of research, PCORnet seeks to integrate a collaborative spirit across every aspect … Continue reading The Power of Collaboration: A Glimpse Into PCORnet’s Commitment to Stakeholder Engagement

Why Engage Patients at “Your Weight Matters”?

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Author: Kimberly Holmquist, MPH, Research Project Manager for Kaiser Permanente Southern California (KPSC) Research & Evaluation, the Lead Site for Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) Network and Lead Site for PCORnet secondary aim for bariatric studies. Kimberly started her career in medical research with the Centers for Disease Control … Continue reading Why Engage Patients at “Your Weight Matters”?

A Monumental Step Toward Understanding and Diagnosing Prosopagnosia (Face Blindness)

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Author: Christina Pressl, MD, Clinical Scholar and Investigator for New York City Clinical Data Research Network (NYC-CDRN), one of 13 Clinical Data Research Networks (CDRNs) funded by PCORI. Christina received her MD from the Medical University of Graz, Austria in 2009. She then spent the following three years of residency in Radiology at the General … Continue reading A Monumental Step Toward Understanding and Diagnosing Prosopagnosia (Face Blindness)