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PCSK9 Inhibitor Study Demonstrates PCORnet’s Capacity for Rapid-Cycle Research

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Sometimes, you need reliable research results fast. That was the case for one health plan that came to PCORnet for help understanding the prescribing patterns for PCSK9 inhibitors. These are effective but costly medications used to lower LDL cholesterol (also known as “bad” cholesterol). “As the first PCORnet rapid-cycle research project, the PCSK9 inhibitor study … Continue reading PCSK9 Inhibitor Study Demonstrates PCORnet’s Capacity for Rapid-Cycle Research

Want to Use Medicare Claims Data to Support Your Study? PCORnet’s CMS Linkage Team Shares How It Can Be Done

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The Centers for Medicare and Medicaid Services (CMS) collect over two billion data points per year through the payment of Medicare health claims, and until now, this wealth of information has been largely inaccessible to researchers. Always seeking out new pathways to better insights, PCORnet, the National Patient-Centered Clinical Research Network, launched its CMS Linkage … Continue reading Want to Use Medicare Claims Data to Support Your Study? PCORnet’s CMS Linkage Team Shares How It Can Be Done

AMIA 2018 Recap

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A The American Medical Informatics Association (AMIA) held its 2018 Annual Symposium in San Francisco, where PCORnet, the National Patient-Centered Clinical Research Network, shared how it is using data and technology to fuel a healthier, more engaged patient community. The symposium brings together diverse stakeholders, including clinicians, researchers, policy makers, and academics, making it a … Continue reading AMIA 2018 Recap

PCORnet Successes on Full Display at PCORI’s 2018 Annual Meeting

PCORI’s recent 2018 Annual Meeting showcased PCORnet-related research through more than 14 posters over the meeting’s three days. These posters highlighted PCORnet’s innovative tactics for patient recruitment and engagement, the power of PCORnet’s data and infrastructure, and patient-centered research in action. Here are some of the highlights: Patient Recruitment & Engagement The first step of … Continue reading PCORnet Successes on Full Display at PCORI’s 2018 Annual Meeting

PCORnet Study Results Show Small Link between Childhood Obesity and Antibiotics

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As researchers dig into the science behind obesity, particularly in young children, we are learning some interesting things. For example, a growing body of evidence shows that our microbiome, a word for the collective trillions of bacteria and other microbes that live in our gut, may be a factor in how our body handles fat. … Continue reading PCORnet Study Results Show Small Link between Childhood Obesity and Antibiotics

Weighing the Options: PCORnet Study Shows Gastric Bypass Surgery Yields Greater Weight Loss than Other Procedures

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PCORnet, the National Patient-Centered Clinical Research Network, is delivering on its mission to answer important questions that help patients make better-informed health care decisions. The Annals of Internal Medicine this week published findings from the PCORnet Bariatric Study.   This study compared the health benefits of three common weight-loss operations: gastric bypass, sleeve gastrectomy, and … Continue reading Weighing the Options: PCORnet Study Shows Gastric Bypass Surgery Yields Greater Weight Loss than Other Procedures

Join in PCORI’s 4th Annual Meeting

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Want to be inspired with insights and new ideas for bringing evidence-based, patient-centered research to life? Look no further than PCORI’s 4th Annual Meeting, which runs from October 31 through November 2 in Washington, D.C. This year’s event, “From Evidence to Impact: Putting What Works into Action,” will spotlight results from dozens of PCORI-funded studies … Continue reading Join in PCORI’s 4th Annual Meeting

The Unsung Role Caregivers Play in People-Driven Research

Valentine’s Day is upon us, but when you are a caregiver for someone, there’s no need for a special day to show your love. For the 43.5 million unpaid caregivers in the United States, unconditional care that goes above and beyond is a constant daily practice. It’s not a stretch to say that these caregivers … Continue reading The Unsung Role Caregivers Play in People-Driven Research

Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Authors: Elisha Malanga is the Chief Research Officer of the COPD Foundation, a patient-led advocacy organization dedicated to improving the lives of those affected by COPD and the prime organization for the COPD Patient-Powered Research Network (COPD PPRN). She has worked with the COPD Foundation since 2008 and has led numerous efforts including the creation of … Continue reading Invisible No More: COPD PPRN Moves Research Forward to See the Full Picture

Matching Patients to Clinical Trials for People Affected by Hereditary Cancers

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Author: Sue Friedman, DVM, is Executive Director for Facing Our Risk of Cancer Empowered (FORCE) which is a lead organization in PCORnet’s ABOUT Patient Powered Research Network (PPRN).  Friedman is a Co-Principal Investigator for ABOUT. It’s an exciting time for hereditary cancer research as the pace of new personalized medicine treatments and targeted therapies has … Continue reading Matching Patients to Clinical Trials for People Affected by Hereditary Cancers