Leaders from REACHnet, a PCORI-funded PCORnet CDRN based in Louisiana, took advantage of the HealthAcademy’s Annual Research Meeting (ARM) New Orleans location this year by participating in several panel discussions and presentations, including:
- A presentation during a session on Patient Voices in Research and Quality Improvement: “Engaging Stakeholders to Develop a Patient-Centered Research Agenda: Methods and Lessons Learned from the Research Action for Health Network (REACHnet).” Sarah Haynes, a former research coordinator with REACHnet, described how and why REACHnet developed a process for engaging multi-stakeholder advisory groups in the development of patient-centered research agendas for weight management and diabetes.
- Ava Zebrick, a patient partner and consultant with REACHnet, participated in the panel discussion: “The ACA and PCOR Trust Fund Have Advanced Patient and Family Involvement in Research. What is Left to Do?” Zebrick recounted her journey after bariatric surgery as she joined research efforts at REACHnet, earned a master’s degree in health management and found herself becoming “exponentially involved” as a patient advocate in obesity research and policy at the state and federal level.
- REACHnet’s Director of Engagement Rebekah Angove led an innovation workshop: “Preparing Early Career Health Professionals to Meaningfully Engage Patients in Research.” Recognizing that providers play an essential role connecting patients to research but have little to no formal training in patient-centered research, REACHnet developed of a curriculum for medical students to learn some of the fundamental principles of engagement. After iteration and testing, this curriculum will be available online in August.
- Lindsay Hendryx, Program Manager for Health Services Research from REACHnet led an innovation workshop on The REACHnet Pragmatic Trial App Suite. In this session, Hendrix and colleagues demonstrated a tablet-based research recruitment tool currently in implementation in multiple health systems and Federally Qualified Health Centers. By making tablets available in clinics, patients are able to use the proprietary app to learn more about research opportunities, take customer service surveys, and choose to be contacted about study opportunities.
REACHnet was one of many PCORnet networks to participate at ARM. Read about other networks participating this year at ARM.
If you are speaking or presenting at an upcoming conference or event, please keep the PCORnet communications team in the loop! Contact Jennifer Cook at firstname.lastname@example.org.
PCORnet, the National Patient-Centered Clinical Research Network, is an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI). The goal of PCORnet is to improve the nation’s capacity to conduct clinical research by creating a large, highly representative network that directly involves patients in the development and execution of research. More information is available at www.pcornet.org.
The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work. More information is available at www.pcori.org.