Design Power: Patients Play Researchers in Drug Trials

WSJ.com; Amy Dockser Marcus, September 29, 2014

Scientists regularly sign up patients in clinical trials to test new treatments. Now, they are seeking patients to help them design some of those trials.

Patients and researchers can bring different perspectives to treating disease. In a trial of a potential prostate-cancer drug getting underway at the Icahn School of Medicine at Mount Sinai in New York, doctors had planned to ask patients periodically about side effects such as nausea. But patient input convinced them to ask additional questions, including how many days patients felt well enough to go to work.

Patients have also helped design a trial at the University of Wisconsin, where researchers are testing a new strategy to help children with diabetes monitor their disease, and another trial comparing epilepsy drugs in children at Emory University School of Medicine.

Read the full article …