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March 2017

PCORnet Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal: An Alzheimer’s PPRN Tool to Facilitate Patient-centered Clinical Research

March 7, 2017 @ 12:00 pm EST - 1:00 pm EST

The Brain Health Registry Caregiver and Study Partner Portal is a novel, innovative online tool for recruitment, engagement, assessment, and education of caregivers.   We will describe the data collected so far using the Caregiver Portal and its potential impact on dementia research, including ways that it can facilitate Alzheimer’s disease clinical trials and improve screening of older adults for cognitive decline in various healthcare settings.  We will also discuss the ways that the Caregiver Portal can be adapted to engage…

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February 2017

ADAPTABLE Facebook Live Broadcast

February 13, 2017 @ 11:30 am EST

February is heart month—a time where we raise awareness about heart disease and how people can prevent it. Heart disease is the leading cause of death for men and women in the United States. Every year, 1 in 4 deaths are caused by heart disease. The good news is that heart disease can often be prevented when people make healthy choices, manage their health conditions, and take medications as appropriate. The second ADAPTABLE Facebook Live event will be broadcasted from…

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January 2017

PCORnet Best Practice Sharing Session: Transformational Approaches to Achieving Health Equity through Engaged Research

January 31, 2017 @ 1:00 pm EST - 2:00 pm EST

For biomedical research to improve health broadly, we must 1) ensure diversity in studies, 2) address mistrust in research, particularly among racial/ethnic minorities, 3) increase health literacy, and 4) employ participant-centered study design and dissemination. All of these goals are achievable through Community Engaged Research. This webinar examines components of diversity and provides a review of engaged research approaches needed to address disparities. Speaker: Consuelo H. Wilkins, MD, MSCI, is a physician, biomedical researcher and current Executive Director of the…

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November 2016

PCORnet Best Practice Sharing Session: Becoming a Brand Ambassador for PCORnet

November 3, 2016 @ 12:00 pm EST - 1:00 pm EST

As the public launch of the National Patient-Centered Clinical Research Network, PCORnet, nears, every one of us who has had a hand in building the network is taking on an important new role: we must each serve as a PCORnet advocate, actively sharing the story of who we are, why we are here, and how PCORnet can facilitate efficient, trustworthy clinical research. Please join us on Thursday, Nov. 3 from 12-1 p.m. ET for a Best Practice Sharing Session focused…

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October 2016

PCORnet Best Practice Sharing Session: Community Engagement Using Digital Technologies

October 19, 2016 @ 12:00 pm EST - 1:00 pm EST

This webinar will provide an overview of digital and social media approaches to engaging patient stakeholders in research networks. Principal investigators (PIs) from two Patient-Powered Research Networks, ArthritisPower™ (AR-PoWER PPRN) and Population Research in Identity and Disparities for Equality Patient-Powered Research Network (PRIDEnet), will share information about the strategies and vendors they have been using for patient outreach and recruitment. The presentation will include utilizing traditional social media (Facebook, Twitter), text message short codes, mobile apps, sharable videos and gifs, and other liberated orbital…

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September 2016

PCORnet Building Trustworthiness Public Webinar

September 16, 2016 @ 1:00 pm EST - 2:00 pm EST

Engaging patients as partners throughout the research process requires transparency, a foundation of trust, and sharing of patient health data, which brings empowerment and vulnerability. PCORnet Building Trustworthiness forums bring together patients, participants, caregivers, clinicians, industry, community and advocacy groups, researchers, and the public to start to ask, “How can PCORnet foster trust in clinical research?” and “How will PCORnet facilitate authentic engagement in research?”

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July 2016

The Colorado Patient Partners in Research Network: Reaching Stakeholders through Social Media

July 20, 2016 @ 11:00 am EST - 12:00 pm EST

Join us on Wednesday, July 20th from 11:00am to noon ET for a public webinar that will describe the development of a novel method for matching patient stakeholders who are interested in research with teams that are seeking patient input on research study development and implementation.

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June 2016

Alzheimer’s and Dementia PPRN: Opportunities for Collaborations in PCORnet

June 28, 2016 @ 12:00 pm EST - 1:00 pm EST

Join us on Tuesday, June 28th from noon to 1:00pm ET for a public webinar from the Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (Alzheimer’s PPRN).

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March 2016

Building Trustworthiness in PCORnet

March 28, 2016 - March 29, 2016
Washington Marriott Wardman Park, 2660 Woodley Rd NW
Washington, DC, 20008
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PCORnet is hosting a dynamic workshop to begin a critical dialogue about ethics, trust, and engagement, not just for PCORnet, but clinical research overall. Presenters will catalyze a broad dialogue about these issues by listening deeply to communities (the experts in this topic) and examining examples from inside and outside of health. The sessions will foster meaningful discussion through provocative, brief presentations, and the participants will have the major role.

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October 2015

PCORnet Best Practice Sharing Session: Madelaine Faulkner, MPH – October 20

October 20, 2015 @ 1:00 pm EST - 2:00 pm EST

PCORnet Best Practice Sharing Session:  Health eHeart Stakeholder Engagement Strategies Madelaine Faulkner, MPH Department of Epidemiology and Biostatistics - University of California, San Francisco Introduction Presentation Facilitated Discussion Webinar Information: Phone: 1-855-244-8681 FREE (toll-free) or 1-650-479-3207 (toll) Access code:  738 097 477 Join Online: https://dukemed.webex.com/dukemed/j.php?MTID=m7b58528e573ddd7d1b6fbc1f24326511

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