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May 2018

PCORnet Best Practice Sharing Session – LGBTQ Adaptation of CBT

May 21, 2018 @ 2:00 pm EDT - 3:00 pm EDT

The RADD study offers Resources for Services training to partnered agency staff and hopes to determine if there is an added benefit to offering Resiliency Classes (RC) to study participants receiving services at those agencies. The RC are 7 sessions of CBT taught by a non-licensed instructor to participants with low mood. These were developed by Dr. Jeanne Miranda and adapted for the LGBTQ community through input from community partners and the LGBTQI2-S UsCC (Underserved Cultural Communities) Subcommittee. This subcommittee…

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March 2018

PCORnet Best Practice Sharing Session – Lessons Learned in ADAPTABLE: Recruitment, Retention, and Endpoint Ascertainment

March 7, 2018 @ 2:00 pm EDT - 3:00 pm EDT

This webinar will share early lessons from the design and conduct of the ADAPTABLE Study, the first prospective, large, pragmatic trial conducted within PCORnet. The discussion will focus on recruitment, retention, and endpoint ascertainment. Speakers Schuyler Jones is an interventional cardiologist and his clinical interests include peripheral artery disease, coronary artery disease, and percutaneous coronary intervention. Currently, he serves as  director of the Duke University Cardiac Catheterization Laboratory and the medical director of the Duke Heart Center Clinical Research Unit…

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November 2017

PCORnet Best Practice Sharing Session – PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 2. Best Practices

November 13, 2017 @ 12:00 pm EDT - 1:00 pm EDT

This is Part 2 of a webinar series hosted by the PCORnet Tools for e-consent workgroup on the PCORnet Commons. This webinar will present best practices, tips, and lessons learned for developing and implementing electronic consent. The e-consent workgroup is a collaborative space fostering innovation among those who are currently implementing or seeking to develop tools and strategies for obtaining electronic informed consent. This active group is open to all who are interested in seeking input on electronic informed consent…

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October 2017

PCORnet Best Practice Sharing Session – PCORnet Commons Tools for Electronic Consent Workgroup Webinar Series: Part 1. PCORnet Case Studies

October 23, 2017 @ 12:00 pm EDT - 1:00 pm EDT

The PCORnet Tools for e-consent workgroup on the PCORnet Commons is a collaborative space fostering innovation among those who are currently implementing or seeking to develop tools and strategies for obtaining electronic informed consent. This active group is open to all who are interested in seeking input on electronic informed consent tools under development, resources, and lessons learned. To facilitate the sharing of ideas, the workgroup is hosting a two-part webinar series this Fall. The first webinar will include presentations…

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September 2017

PCORnet Best Practice Sharing Session: Leveraging the PCORnet Commons to Engage, Disseminate, and (Hopefully) Transfer Research Innovations

September 22, 2017 @ 11:00 am EDT - 12:00 pm EDT

The PCORnet Commons is designed to extend the reach of PCORnet and has the potential to be a conduit for collaboration and innovation in PCORnet and beyond. The publically accessible online community is intended to facilitate communication and collaboration, help users build meaningful relationships, and reinforce a culture of sharing. By providing opportunities for interaction within and outside of PCORnet, the speakers are hoping to show how users can leverage the PCORnet Commons to turn their innovative ideas into tangible…

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August 2017

PCORnet Best Practice Sharing Session: Stakeholder Contributions to Scientific Manuscripts and A Web-Based Platform for Engaging and Connecting Patients & Caregivers

August 29, 2017 @ 1:00 pm EDT - 2:00 pm EDT

The PCORnet Bariatric Study (PBS) uses data from 11 CDRNs, representing up to 53 health care delivery sites, to compare the risks and benefits of three bariatric procedures used for weight loss. This Best Practice Session will cover learnings from our project team on including stakeholders in our project. Writing Manuscripts: Writing groups in the PBS consist of investigators from each data-contributing site, diverse stakeholders, and study staff. Prior experience with the scientific writing process varied considerably amongst authors.  We will…

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July 2017

PCORnet Best Practice Sharing Session – Using Narratives to Promote Engagement: The MyPaTH Story Project

July 11, 2017 @ 10:00 am EDT - 11:00 am EDT

This session will describe how the PaTH network has developed an archive of patient stories to support the development of people-centered research questions in PCORnet and facilitate patient engagement in patient-centered outcomes research. Discussion will include how patient input shaped the project, the logistics of story collection, a description of the data that accompanies each story, and ways in which the data can be used by PCORnet researchers. We will describe ongoing collaborations that facilitate introductions between story tellers and…

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June 2017

PCORnet Best Practice Sharing Session – Leveraging Social Media to Raise Awareness and Build Community

June 8, 2017 @ 11:00 am EDT - 12:00 pm EDT

With 81 percent of the U.S. population reporting owning a social networking profile in 2017, social media provides a great opportunity for patients and researchers to connect with each other, build communities, and raise awareness of patient-centered research. Achieving the most impact from a social media presence requires savvy on which channels to engage and how. Social media specialists from the PCORnet Patient Powered Research Network, Arthritis Power (AR-PoWER PPRN), and PCORnet’s first demonstration study, ADAPTABLE, will explore the opportunities…

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May 2017

Webinar: Getting Started with SMART IRB & the Online Reliance System

May 23, 2017 @ 4:30 pm EDT - 5:30 pm EDT

In response to the NIH’s Single IRB Policy, PCORnet is working in harmonization with NCATS, encouraging its collaborators to participate in the Streamlined, Multisite, Accelerated Resources for Trials (SMART) IRB Reliance Platform. The SMART IRB Online Reliance System is a unique tool that helps institutions establish and document single IRB review arrangements. By using this system: Investigators can create and submit requests to use a single IRB for their studies. Collaborating institutions can work together to identify a Reviewing IRB and track and document…

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Webinar: Implementing the SMART IRB Agreement

May 18, 2017 @ 2:30 pm EDT - 4:00 pm EDT

In response to the NIH’s Single IRB Policy, PCORnet is working in harmonization with NCATS, encouraging its collaborators to participate in the Streamlined, Multisite, Accelerated Resources for Trials (SMART) IRB Reliance Platform. Description: Your institution has joined the SMART IRB Agreement, now what? Join us for one of our upcoming SMART IRB webinars, which will provide an overview of how to implement the SMART IRB Agreement for studies at your institution. Speaker: Nichelle Cobb, PhD, Chief Regulatory Operations Officer for Implementation for SMART IRB,…

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