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March 2017

PCORnet Best Practice Sharing Session: The Brain Health Registry Caregiver and Study Partner Portal: An Alzheimer’s PPRN Tool to Facilitate Patient-centered Clinical Research

March 7, 2017 @ 12:00 pm EST - 1:00 pm EST

The Brain Health Registry Caregiver and Study Partner Portal is a novel, innovative online tool for recruitment, engagement, assessment, and education of caregivers.   We will describe the data collected so far using the Caregiver Portal and its potential impact on dementia research, including ways that it can facilitate Alzheimer’s disease clinical trials and improve screening of older adults for cognitive decline in various healthcare settings.  We will also discuss the ways that the Caregiver Portal can be adapted to engage…

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