Chris Forrest, MD, PhD
Dr. Forrest is Professor of Pediatrics and Health Care Management at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania. He is the Director of the CHOP Center for Applied Clinical Research, which is devoted to advancing multi-institutional clinical and health services research in routine pediatric healthcare settings. Dr. Forrest serves as the Principal Investigator of PEDSnet, a national consortium of children’s hospitals that conducts patient-centered outcomes research among children and youth. He is the Chair of the Research Committee for PCORnet, the national clinical research network funded by PCORI. He also chairs the Steering Committee for the National Institute's of Health (NIH) Validation of Pediatric Patient-Reported Outcomes in Chronic Disease (PEPR), which evaluates patient-reported outcome measures for children with chronic conditions. Dr. Forrest received his BA and MD degrees from Boston University and completed his PhD in Health Policy and Management at Johns Hopkins School of Public Health.
Adrian F. Hernandez, MD, MHS, FAHA
Dr. Hernandez, Professor of Medicine at Duke University Medical Center, is a cardiologist with extensive experience in clinical research ranging from clinical trials to outcomes and health services research. He is the Faculty Associate Director of the Duke Clinical Research Institute and Director of the Health Services and Outcomes Research Domain. He has led several research grants funded to address issues in clinical care, health policy, quality of care, and outcomes. He is the Coordinating Center Principle Ivestigator of multiple large studies and networks including the National Heart, Lung, and Blood Institute (NHLBI) Heart Failure Research Network, PCORI’s PCORNet and the NIH’s Collaboratory. A central aim of these networks is to transform clinical research uniting patients, clinicians, health systems and electronic health data to establish national systems of evidence generation to improve population health and decision making.
Dr. Hernandez has over 300 published articles in high-tier journals on cardiovascular outcomes including the New England Journal of Medicine, Journal of the American Medical Association, and Lancet. He is an Associate Editor for JAMA Cardiology and serves on the leadership of several national committees for professional societies such as the American Heart Association and American College of Cardiology. He has been recognized for his research through numerous awards and was elected to the American Society of Clinical Investigation in 2012. He has mentored over 30 students, residents, fellows and faculty and has been a recipient of the Robert M. Califf Mentorship Award.
J. Kiely Law, MD, MPH
Kiely Law is co-founder and Research Director of the Interactive Autism Network (IAN), a participant-powered research initiative focused on improving the lives of children and adults with Autism Spectrum Disorder (ASD). Since its launch in 2006 at the Kennedy Krieger Institute, IAN has engaged more than 50,000 individuals in ASD research. Kiely is the Principal Investigator for IAN’s PCORI award and is responsible for developing and implementing the network’s research activities. Advancing ASD research is both a professional and personal mission for Kiely. In 1996, her son was diagnosed with autism at the age of three. As the Mom and caregiver of a young adult with ASD, she knows the unique value of information collected directly from those living with the struggles and triumphs of autism every day. Kiely received her medical and public health training at Johns Hopkins University and is a Research Associate in the Department of Pediatrics at the Johns Hopkins School of Medicine.
Keith Marsolo, PhD
Keith Marsolo is an Associate Professor in the Division of Biomedical Informatics at Cincinnati Children’s Hospital Medical Center whose research interests include approaches to collect and extract research data from the EHR at scale, the development of informatics architectures and standards that can support multi-center learning health systems, methods to characterize the quality and suitability of electronic health record (EHR) data, and the design and instantiation of common data models to facilitate distributed research queries. He is a co-Investigator in the ImproveCareNow Patient-Powered Research Network as well as the PEDSnet Clinical Data Research Network. He served as co-chair for the Data Standards, Security and Network Infrastructure Task Force during Phase I of PCORnet.
Kathleen McTigue, MD, MPH
Kathleen McTigue is Associate Professor of Medicine, Epidemiology and Clinical/Translational Science at the University of Pittsburgh. She is a general internist whose research has focused on the epidemiology of obesity and on using technology to provide evidence-based and patient-centered care for the treatment of obesity and prevention of cardiovascular risk in the primary care setting. Dr. McTigue is the lead Principal Investigator of the PaTH Clinical Data Research Network and a co- Principal Investigator of the PCORnet Bariatric Study, one of the first PCORnet observational studies. She directs the Clinical Scientist Track for the UPMC Internal Medicine residency and has mentored over thirty students, residents, fellows and faculty. Dr. McTigue received her MD/MPH degrees from the University of Connecticut and completed internal medicine residency training at the University of Colorado, as well as a preventive medicine residency and the RWJ Clinical Scholars program at the University of North Carolina-Chapel Hill.
Peter A. Merkel, MD, MPH
Dr. Merkel is the Chief of Rheumatology and a Professor of Medicine and Epidemiology at the University of Pennsylvania. He is the Co-Principal Investigator of the Vasculitis Patient-Powered Research Network within PCORnet and the Principal Investigator of the NIH-Sponsored Vasculitis Clinical Research Consortium. Dr. Merkel is an internationally recognized research and clinical expert in vasculitis and scleroderma, two diseases he has studied for over 20 years, and is an author on over 200 scientific publications. Dr. Merkel’s research focuses on clinical trial design and conduct, outcome measure development, clinical epidemiology, genetic epidemiology, and biomarker discovery. Dr. Merkel has also conducted substantial research in scleroderma with a focus on outcome measures and clinical trial design.
Dr. Merkel received his MD from Yale University, his MPH from Harvard University, completed his residency training at the Hospital of the University of Pennsylvania and his fellowship at the Massachusetts General Hospital/Harvard Medical School.
Richard Platt, MD, MSc
Richard Platt, co-Principal Investigator of PCORnet's Coordinating Center, is Professor and Chair of the Harvard Medical School Department of Population Medicine, at the Harvard Pilgrim Health Care Institute. He is Principal Investigator of the FDA Sentinel System, co-leads the coordinating center of the NIH Health Care System Research Collaboratory and leads a CDC Prevention Epicenter. He co-chairs the CER Innovation Collaborative of the IOM Roundtable on Value and Science-Drive Healthcare, and is a member of the American Medical Colleges Advisory Panel on Research.
Russell L. Rothman, MD, MPP
Dr. Rothman is a Professor of Internal Medicine, Pediatrics and Health Policy, and the Vice President for Population Health Research at Vanderbilt University Medical Center. He is the Director of the Vanderbilt Center for Health Services Research and is Chief of the Internal Medicine/Pediatrics Section. Dr. Rothman's research focuses on improving care for patients with diabetes, obesity and other chronic diseases. He is the Principal Investigator of Mid-South CDRN which engages over 50 hospitals and 1,000’s of ambulatory practices from Vanderbilt, the Vanderbilt Health Affiliated Network, Meharry Medical Center, Greenway Health, Duke, University of North Carolina at Chapel Hill, and Health Sciences of South Carolina. He serves on the PCORI Health Disparities Advisory Board, PCORnet Executive Committee, and is the Co-Chair of the Steering Committee of the ADAPTABLE study. He is also the PI of the Centers for Medicare & Medicaid Services (CMS) funded Mid-South Practice Transformation Network which is engaging 4,000 clinicians in quality improvement.
Joe Selby, MD
After obtaining his MD Degree from Northwestern, Dr. Selby moved to Northern California for internship and a family medicine residency and eventually an MPH at UC Berkeley. His fellowship project concerned Behavioral Factors in Cardiovascular Disease. He stayed in the bay area at Kaiser Permanente for 27 years, including 13 as Director of Research supervising up to 50 investigators and 500 staff members. He has had academic appointments at UC Berkeley, UCSF and Stanford. He has authored more than 200 peer reviewed articles on far ranging topics such as quality measurement and improvement, primary care delivery, colorectal cancer screening and many studies that could be classified under the heading of “comparative effectiveness” – largely in the areas of diabetes, HTN and cardiovascular disease. He has received honors from the Public Health Service, the American Epidemiological Society, Kaiser Permanente and in 2009 he was elected into the Institute of Medicine. In July 2011 Dr. Selby became the first Executive Director of the Patient-Centered Outcome Research Institute (PCORI). PCORI’s mandate is to improve the quality and relevance of the evidence available in order to help patients, caregivers, employers, insurers and policy makers make informed healthcare decisions.
Elizabeth Shenkman, PhD
Elizabeth Shenkman is the chairperson for the Department of Health Outcomes and Policy, the Director of the OneFlorida Clinical Research Consortium and the Co-Director of the NIH-funded University of Florida Clinical and Translational Science Institute (UF-CTSI). Dr. Shenkman’s research focuses on: 1) determining which combinations of health care delivery, community, and patient factors influence quality and outcomes of care; and 2) developing corresponding evidence-based strategies to improve health outcomes. She is the lead Co-Principal Investigator (PI) for the PCORI-funded OneFlorida Clinical Data Research Network, which is a statewide alliance of three academic centers and eight health system partners. In her role as the Co-Director of the CTSI, Dr. Shenkman leads the Implementation Science Program, which develops strategies to promote the uptake of evidence-based best practices in health care settings. Additionally, Dr. Shenkman is the PI of a Centers for Medicare and Medicaid Services-funded randomized clinical trial designed to examine effects of the combined use of health navigators and a flexible wellness account on cardiovascular disease risk reduction among individuals with co-occurring physical and mental health conditions. This project leverages large linked electronic health record, health claims, and laboratory data to examine patient outcomes.
Sharon F. Terry
Sharon Terry is President and CEO of Genetic Alliance, a participatory enterprise engaging individuals, families and communities to transform health. She cofounded PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE), in response to the diagnosis of PXE in her two children in 1994. With her husband, she co-discovered the ABCC6 gene, patented it to ensure ethical stewardship in 2000, and assigned their rights to the foundation. She subsequently developed a diagnostic test and conducts clinical trials. She is the author of 150 peer-reviewed papers, of which 30 are clinical PXE studies. She is Co-PI of the PCORnet Coordinating Center and Chair of the PCORnet Engagement Committee. She is at the forefront of engagement in biomedical research, services and policy; she serves in a leadership role on many of the major international and national organizations, including PMI and Moonshot. Terry is an Ashoka Fellow.