ARthritis patient Partnership with comparative Effectiveness Researchers (AR-PoWER PPRN)

Details and Information

Visit the ArthritisPower Website and Join ArthritisPower

Areas of Focus:  Arthritis (rheumatoid arthritis, spondyloarthritis, osteoarthritis), musculoskeletal disorders (osteoporosis), and inflammatory conditions (psoriasis)

Population Characteristics: All

Organization: Global Healthy Living FoundationCreakyJoints®

Contact: contact@creakyjoints.org

Principal Investigator: Seth Ginsberg, BS

Co-Principal Investigators: Jeffrey R. Curtis, MD, MS, MPH and Benjamin Nowell, PhD, MSW

About Arthritis Power

Created by CreakyJoints in collaboration with the University of Alabama at Birmingham, and supported by a multi-year, multi-million dollar investment by the Patient Centered Outcomes Research Institute (PCORI), ArthritisPower™ is the first ever patient-led, patient-centered research registry for arthritis, bone, and inflammatory skin conditions. ArthritisPower is part of PCORnet, the National Patient-Centered Clinical Research Network, a large, highly representative, national network for conducting clinical outcomes research.

The ArthritisPower mobile and desktop application allows patients to track, measure, and share their symptoms and treatments outcomes while simultaneously participating in arthritis research via informed consent. ArthritisPower Patient Governors serve as gatekeepers for researchers seeking to access registry data or solicit the community to participate in unique, voluntary studies. Patient Governors also help to prioritize research requests and will help to disseminate research findings to members of CreakyJoints, the go-to source for more than 100,000 arthritis patients and their families world-wide who are seeking education, support, advocacy and patient-centered research.

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Last updated on August 19, 2016