National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN)

Details and Information

Visit the AD-PCPRN Website

Areas of Focus: Alzheimer’s Disease & Dementia

Population Characteristics: All

Lead Organization: Mayo Clinic

Contact: www.alzheimerspcprn.org/contact 

Principal Investigator: Ronald Petersen, MD, PhD

Co-Principal Investigators: Glenn Smith, PhD and  Meryl Comer

Program Director: Alex Alexander MPA, MBA

About AD-PCPRN

Mission Statement: Amplifying the Patient and Caregiver  voice to accelerate development of effective treatments for Alzheimer’s disease (AD) and related dementias.

The National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network (AD-PCPRN) is made up of participants who have, are at risk for having, or care for someone who has Alzheimer’s disease (AD) or dementia. The overall goal of this project is to accelerate development of effective treatments for AD and related dementias. The AD PCPRN is powered by patients and their caregivers and led by USAgainstAlzheimer’s (USA2) through its family of patient and caregiver networks, the Mayo Clinic, and the University of California-San Francisco’s Brain Health Registry. This national network will connect patients, caregivers, and researchers focused on developing, conducting, and disseminating patient-centered dementia research. Two key focus areas include caregivers and minority recruitment.

Alzheimer’s PPRN Aims:

  • Enroll an increasingly large number of subjects into this patient-centered network with a minority recruitment focus.
  • Obtain self-reported information and measures of cognition at baseline and longitudinally.
  • Screen & refer subjects for clinical trials.
  • Test computable patient phenotypes.
Last updated on September 1, 2016