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REACHnet Research Featured at AcademyHealth’s Annual Research Meeting

Leaders from REACHnet, a PCORI-funded PCORnet CDRN based in Louisiana, took advantage of the HealthAcademy’s Annual Research Meeting (ARM) New Orleans location this year by participating in several panel discussions and presentations, including: A presentation during a session on Patient Voices in Research and Quality Improvement: “Engaging Stakeholders to Develop a Patient-Centered Research Agenda: Methods … Continue reading REACHnet Research Featured at AcademyHealth’s Annual Research Meeting

PCORnet Highlighted in Recent Publications

PCORnet, the National Patient-Centered Clinical Research Network, a PCORI initiative, was recently highlighted in two articles that underscore its increasing influence as a leader in the movement toward patient-centered research. The first was authored by PCORnet’s Patient Outcomes Research to Advance Learning (PORTAL) Clinical Data Research Network (CDRN) and published in Obesity. It explores the … Continue reading PCORnet Highlighted in Recent Publications

PCORnet Partner Networks Collaborate with Federal Agencies to Evaluate Effects of Health Policy on Diabetes Outcomes

Do you know somebody affected by diabetes? With more than 29 million Americans suffering from Type 1 or Type 2 diabetes and another 86 million affected by prediabetes, chances are, you do. In fact, diabetes has become so prevalent that the prevention and management of these serious diseases have become a national priority. In March … Continue reading PCORnet Partner Networks Collaborate with Federal Agencies to Evaluate Effects of Health Policy on Diabetes Outcomes

What Should I Eat? (The Burning Question in Crohn’s Disease)

Author:  Carol Brotherton, PhD, MSN, BSN, the Co-Principal Investigator and Patient Representative for the DINE-CD, a PCORnet Patient Powered Research Network (PPRN) study funded by PCORI. Carol earned her nursing degree from the University of Delaware. She earned Masters and Doctoral degrees in Nursing from the University of Virginia. She discovered during 15 years of … Continue reading What Should I Eat? (The Burning Question in Crohn’s Disease)

PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

What if the National Patient-Centered Clinical Research Network (PCORnet) teamed up with another robust distributed research network to combine powers in the pursuit of clinical research? Could researchers use the linkage to enhance complete data for surveillance and glean insights that allow people to make better informed, evidence-based decisions on important health-related matters? A new … Continue reading PCORnet Joins Forces with Sentinel to Link Data for More Robust Public Health Research

Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

May is National Arthritis Awareness Month, a time to raise awareness about the number one cause of disability in the country: arthritis. According to the Arthritis Foundation, more than 50 million adults have doctor-diagnosed arthritis, and by the year 2040, that number is expected to grow to more than 78 million. A Patient-Powered Research Network … Continue reading Creaky and Creative: AR-PoWER Captivates Audiences with Fun and Interactive Engagement Approaches

A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

At the center of the National Patient-Centered Clinical Research Network (PCORnet), PCORI’s most ambitious initiative to date, lies the PCORnet Coordinating Center, a hard-working engine that combines three prominent research organizations, Duke Clinical Research Institute, Genetic Alliance, and Harvard Pilgrim Health Care Institute, to effectively manage the entire Network’s data and engagement activities. The Coordinating … Continue reading A Look into PCORnet’s Coordinating Center: Harmonizing Data Across a Vast Network

PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

Data quality is a crucial consideration when leveraging a Clinical Data Research Network (CDRN) to conduct large-scale research. The PEDSnet CDRN is helping to validate the utility of CDRN data with a study featuring an in-depth analysis of its data quality that was recently featured in the Journal of American Medical Informatics Association (JAMIA). PEDSnet … Continue reading PCORnet’s PEDSnet CDRN Longitudinal Study of Data Quality Published in Journal of American Medical Informatics Association

Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

When Heather Siefers visits her doctor to discuss her Multiple Sclerosis (MS), her doctor will tell her about the data from her lab tests and measures such as her liver function, blood pressure and weight. However, Siefers asks: shouldn’t data on quality of life indicators be captured alongside clinical data? She is also interested in … Continue reading Health Datapalooza Conference Session Highlights Patient Roles in PCORnet

PCORnet Releases Refreshed Data and Expanded Conditions of Interest

The National Patient-Centered Clinical Research Network, PCORnet, today released a refreshed view of its data that sheds light on more recent patient encounters than was previously available and includes an expanded list of conditions of interest. Founded in 2014 as an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI), PCORnet aims to speed the … Continue reading PCORnet Releases Refreshed Data and Expanded Conditions of Interest